Posts Tagged ‘brain shunt’
Device Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery
ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.
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Hydrocephalus Receives National Attention
TLC aired a feature piece on hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.
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Why I WALK – For a Better Tomorrow
The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.
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Why I WALK to Raise Hydrocephalus Awareness
“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.
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FDA Clears MRI-Compatible Shunt System by Medtronic
The Food and Drug Administration cleared Medtronic’s new StrataMR™ valve and shunt system for use in the United States.
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Hawk and Why I WALK
A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.
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Inspiring 26 Miles: A Posse of Penguins Take On the LA Marathon
Inspired by her cousin, Jessica, and her journey with hydrocephalus, Katie, along with other family members, set out to run the LA Marathon in Jessica’s honor.
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That Feeling of Helplessness
One mom openly and honestly shares the many emotions that challenge parents of children living with hydrocephalus.
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Overcoming Bullying through a Passion for Sports
Bryant found sports to help him get through being bullied because of his hydrocephalus. He challenges us to each find our own passion and let it grow our individual confidence and resilience.
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ISHCSF Highlights HCRN Studies on Shunt Failure and Infection
ISHCSF newsletter highlights Hydrocephalus Clinical Research Network (HCRN) studies around hydrocephalus shunt infection rates and risk factors.
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Announcing the 2015 Innovator Award Grantees
2015 Awardees focused on research to better understand why hydrocephalus develops and to identify therapies to prevent or reverse hydrocephalus.
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Mixed Emotions: Heartbreak
Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.
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Mixed Emotions: Joy
Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.
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Hydrocephalus Community Loses a Trailblazer
It is with deep sadness we announce the passing of Noel Tulipan, MD, renowned neurosurgeon and trailblazer in fetal surgery repair for spina bifida.
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Diana Gray Announced as the New Chief Executive Officer
The Hydrocephalus Association (HA) is pleased to announce the appointment of Diana Gray as the new Chief Executive Officer (CEO).
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Announcing 2015 Hydrocephalus Association TTC Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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The Miami Herald Raises Awareness of Normal Pressure Hydrocephalus
When our traditional notions of aging can cloud our ability to ask questions early and often for our loved ones…
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Navigating Social Interactions Growing Up with Hydrocephalus
In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.
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The Patient Voice in Hydrocephalus Research Studies
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.
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Realizing I Had Hydrocephalus
Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.
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