Dr. Rob Naftel of Vanderbilt University traveled to Uganda to learn the new surgical treatment for hydrocephalus, endoscopic third ventriculostomy (ETV) combined with choroid plexus cauterization (CPC). Training under Dr. Benjamin Warf of Boston Children’s Hospital, who pioneered the procedure, Dr. Naftel will be able to apply the technique to his current practice, expanding a multi-site outcomes research study led by the Hydrocephalus Clinical Research Network (HCRN), which Vanderbilt joined in 2013.
Hydrocephalus Association CEO Dawn Mancuso shares her excitement and gratitude for a special event held for the Hydrocephalus Association in New York City on October 10, 2013, that moves the association mission closer to raising greater awareness of hydrocephalus and, ultimately, finding a cure.
The Hydrocephalus Association’s First Annual Vision Dinner, “A Time for Awareness; The Hope for a Cure,” unites politicians, neurosurgeons, scientists, advocates, and business leaders to raise the public profile of hydrocephalus and to share the current research initiatives and successes around the condition.
The NINDS NIH posted a video on Dr. Benjamin Warf and his MacArthur Fellowship Award for his contribution to hydrocephalus research and treatment.
Dr. Benjamin Warf and four other Boston colleagues have been named 2012 MacArthur Fellows and awarded $500,000 “genius grants” by the MacArthur Foundation.
The Hydrocephalus Association held it’s 12th National Conference on Hydrocephalus in Bethesda, MD from June 27th through July 1st, 2012. As always we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Conference Highlights: Advocacy Day On Thursday, June 28th, over 200 participants visited their congressional representatives to lobby for […]
We are honored and excited to announce that Benjamin Warf, MD is joining our faculty this June in Bethesda, MD. Dr. Warf is scheduled to give the Keynote Address during lunch on Saturday June 30th. His Inspirational Keynote Address will encompass his work treating hydrocephalus in Sub-Saharan Africa. Dr. Warf began his career in pediatric […]
by Tom Smith, HA Adult Services and Outreach Coordinator A congressional hearing was held yesterday in front of the House Subcommittee on Africa, Global Health, and Human Rights discussing research and treatments for hydrocephalus that could benefit children around the world. Benjamin Warf, MD, a pediatric neurosurgeon at the Children’s Hospital in Boston, MA was […]