Alzheimer’s

NPH

Like Father, Like Son: An NPH Journey

One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.

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Coping with Normal Pressure Hydrocephalus

Ontario man shares his journey with Normal Pressure Hydrocephalus and the support he received to cope with the diagnosis.

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water on the brain is normal pressure hydrocephalus

The Difficulties of Diagnosing Normal Pressure Hydrocephalus

Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?

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Normal Pressure Hydrocephalus Chicago Med

Chicago Med Raises Awareness of Treatable Dementia

On November 24, 2015, NBC’s Chicago Med aired an episode which highlighted Normal Pressure Hydrocephalus (NPH), often referred to as a treatable dementia.

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UNCP Hopes to Push TBI Research Forward With Help of Recent Grants

University of North Carolina has been awarded a grant to fund a study for neurotoxin action. Lead Scientist Dr. Bahr hopes the recent grants will push forward traumatic brain injury program and Alzheimer’s research.

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Hydrocephalus Infographic

Hydrocephalus Awareness Infographic

Raise hydrocephalus awareness by sharing this infographic!

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water on the brain is normal pressure hydrocephalus

The Miami Herald Raises Awareness of Normal Pressure Hydrocephalus

When our traditional notions of aging can cloud our ability to ask questions early and often for our loved ones…

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Greys Anatomy features Normal Pressure Hydrocephalus

Grey’s Anatomy Highlights Misdiagnosis of Normal Pressure Hydrocephalus

On Thursday, March 19, 2015, Grey’s Anatomy aired an episode which highlighted Normal Pressure Hydrocephalus and raised awareness of a “treatable dementia.”

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US News and World Report NPH Article

U.S. News & World Report Features Normal Pressure Hydrocephalus

Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.

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FoxNews Is it dementia?

FOX News Educates the Public on Normal Pressure Hydrocephalus

With it’s recent story on Normal Pressure Hydrocephalus, Fox News plays an important role in our continued efforts to educate the public and raise awareness about hydrocephalus and normal pressure hydrocephalus to a large national audience.

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Study Could Lead to Treatments for TBI and Neurodegenerative Disorders

Researchers at Yale School of Medicine have discovered a new pathway to help treat perinatal brain injuries that could lead to treatments for traumatic brain injuries and neurodegenerative disorders like Alzheimer’s and Parkinson’s.

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Newsday Features Normal Pressure Hydrocephalus

Reporter Peter King with Newsday interviews Dr. Norman Relkin about Normal Pressure Hydrocephalus and the difficulties with discerning between it and Alzheimer’s.

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Dick Wagner at Detroit Hydrocephalus Association WALK

A Sad Farewell to a Rock Legend and HA Advocate: Dick Wagner

It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA. “On behalf of the board of directors and staff […]

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Dick Wagner at the Hydrocephalus Association Detroit WALK 2013

A Sad Farewell to a Rock Legend and HA Advocate: Dick Wagner

It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA.

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New Book on NPH Sights Considerable Savings with Proper Diagnosis

Dr. Daniele Rigamonte, director of the Department of Neurosurgery’s stereotactic radiosurgery at Johns Hopkins, shares his vast knowledge of Normal Pressure Hydrocephalus in a newly published book, “Adult Hydrocephalus.” In the book he sites a 2007 study he led that highlights the potential national cost savings to proper timely diagnosis of NPH by the medical community.

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Brain Implant Could Restore Memory

The Lawrence Livermore National Laboratory is developing a device that they hope will restore memory in patients with Alzheimer’s disease, traumatic brain injury (TBI), epilepsy, and other neurological conditions.

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Experts in Brain Function Decry Lack of Care for Treatable Dementia Patients

50 years after his father first recognized and treated normal pressure hydrocephalus, Dr. Carlos Hakim is partnering with the Hydrocephalus Association and other clinicians on a mission to advocate for screening and proper diagnosis of the estimated 375,000 Americans suffering with this treatable form of dementia.

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National Hydrocephalus Conference 2014

2014 Conference Update – NPH Track Highlights

By Jennifer Bechard Johnson, Education Manager There is something for everyone at our 13th National Conference on Hydrocephalus. We are happy to announce that this year’s conference will have a special track of programming dedicated to meeting the needs of the normal pressure hydrocephalus (NPH) population. Here is a preview of what our conference has to […]

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National Hydrocephalus Conference 2014

2014 Conference Update – Preliminary Schedule Now Available!

The Hydrocephalus Association staff is happy to announce the release of our preliminary schedule for our upcoming 13th National Conference on Hydrocephalus, Community. Clarity. Cure., July 9-11, 2014, in Portland, OR.

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Musician Dick Wagner Shares the Long Road to Diagnosis of Normal Pressure Hydrocephalus

Fox 10 News Phoenix airs a powerful interview with famous rock musician Dick Wagner about his long road to receiving the proper diagnosis of Normal Pressure Hydrocephalus.

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What if it isn’t Alzheimer’s or Parkinson’s? Understanding Normal Pressure Hydrocephalus

The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.

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Alzheimer’s Weekly Features Normal Pressure Hydrocephalus

Alzheimer’s & Dementia Weekly features a news piece by Dr. Holly Phillips of CBS 2 New York on Normal Pressure Hydrocephalus and how it is often misdiagnosed as Alzheimer’s.

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NEW Hydrocephalus Educational Webinar Launch

The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!

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NPH Featured on Boston National Public Radio Show

National Public Radio Boston affiliate WBUR’s Here and Now host, Robin Young, interviews Dr. Mark Johnson, neurosurgeon and head of the Adult Hydrocephalus Program at Brigham and Women’s Hospital, about Normal Pressure Hydrocephalus (NPH).

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Boston Globe Shares Local Man’s Journey with NPH

Boston Globe health reporter, Kay Lazar, shares the story of Jim Lambert’s journey of misdiagnosed Normal Pressure Hydrocephalus, after an initial diagnosis of Alzheimer’s.

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Research UPDATE: Improving Diagnosis of NPH Through Imaging

Continuing with our Mentored Young Investigator (MYI) blog series, we want to highlight one of the 2009 recipients, Dana Moore, Ph.D. Her study entitled, “Quantitative measurement of ventricular volume and cortical atrophy to improve diagnosis of Normal Pressure Hydrocephalus (NPH),” aimed to improve diagnosis of NPH through imaging. NPH is a chronic neurological disorder in adults. […]

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Water on the Brain?

TTC Advisory Council Member Madeleine Darowiche shares her recent experience with her mom and a man with Normal Pressure Hydrocephalus.

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Obama Proposes BRAIN Initiative

President Obama proposed $100 million in funding for the Brain Research Through Advancing Innovative Neurotechnologies, or BRAIN, Initiative with the goal of gaining a better understanding of the functioning of the brain to in turn find better treatment options for a range of brain disorders.

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Online Presentation: Could Your Alzheimer’s or Parkinson’s Diagnosis Really Be NPH?

Memorial Hermann-Texas Medical Center hosts a recorded presentation by Dr. Dong H. Kim, director of the Mischer Neuroscience Institute and chief of neurosurgery, detailing the diagnosis of normal pressure hydrocephalus.

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Washington State Woman with NPH Misdiagnosed with Alzheimer’s

Everyday Health reports on the story of Judy Russell who was misdiagnosed with Alzheimer’s for her memory loss. She was later diagnosed with Normal Pressure Hydrocephalus (NPH).

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A Guitar Rock Legend Builds Awareness of NPH

ABC News Worldwide features a story today on guitar rock legend, Dick Wagner and his diagnosis of Normal Pressure Hydrocephalus (NPH). The article – Rock Star Nearly Loses Career with “Curable” Dementia – is another step forward in increasing public awareness of both NPH and hydrocephalus.

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AARP Informs Members About Normal Pressure Hydrocephalus

Dr. Michael Turner, neurosurgeon, talks about Normal Pressure Hydrocephalus on AARP Radio.

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Two-Part Series in the NYT on Alzeimer’s Also Addresses NPH

Writing for the New York Times in a two-part series, Dr. P. Murali Doraiswamy, a psychiatry professor at Duke University Medical Center and an author of “The Alzheimer’s Action Plan” answers reader’s questions about Alzheimer’s Disease and addresses misdiagnosis of Normal Pressure Hydrocephalus (NPH).

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Is There a Cure for My Dementia?

Today’s article in Parade Magazine, What If Grandpa Doesn’t Really Have Alzheimer’s?, plays an important role in our quest to educate the public about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH. While the condition was identified over 50 years ago, there is little research into the condition, which so far is the only known reversible form of dementia but it is often mistaken for Alzheimer’s or Parkinson’s Disease.

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