advocate

Congress Preserves Program Essential to Quality Hydrocephalus Research

Thanks to the efforts of a range of advocates, including the hydrocephalus community, Congress has preserved the Congressionally Directed Medical Research Program (CDMRP).

CONTINUE READING

Stanley White: From Aerospace Engineer to NPH Advocate

87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.

CONTINUE READING

2017 Rally For Medical Research

We are excited to invite YOU to join the HA staff to represent the hydrocephalus community at the 2017 Rally For Medical Research.

CONTINUE READING

Healthcare Up for Vote in Senate

Contact your Senator TODAY and urge them to oppose the AHCA before voting ends on Friday. If passed into law, the AHCA as it currently stands would be devastating for individuals with preexisting conditions, like hydrocephalus, and millions of Americans.

CONTINUE READING

Request Your Meeting for the Congressional Recess!

Draft email template to use to request a meeting with your elected official during the February recess, from our Advocacy Training Webinar.

CONTINUE READING
Hydrocephalus Teen Webinar

Speak Up: Owning Your Condition Webinar Recording NOW Available!

Tess Jacobsen, presents tips, resources, and solutions on how to own your condition in this recent Webinar recording now available!

CONTINUE READING
Hydrocephalus Association Webinar Speak Up!

Upcoming Webinar – Speak Up! Owning Your Condition

In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.

CONTINUE READING
Teens with Hydrocephalus

Finding a Voice

Two teens living with hydrocephalus and one sibling share their first conference experiences attending the Hydrocephalus Association’s biennial National Conference on Hydrocephalus.

CONTINUE READING

2012 Hydrocephalus Association TTC Scholarship Recipients

The Hydrocephalus Association Teens Take Charge program trains teenagers and young adults (and their siblings), who are affected by hydrocephalus, to take charge of the condition and become self-advocates with both health professionals and with their legislators. Through a generous grant from the Medtronic Foundation, the Hydrocephalus Association is able to award five scholarships, in the amount of $1,000, to teens and young adults (ages 17 to 25) who are affected by hydrocephalus.

CONTINUE READING
Change this in Theme Options
Change this in Theme Options