Check out our latest Ask the Expert Video Series developed specifically for adults living with hydrocephalus. The series answers some of the most common questions we receive to our support line.
Miss the 15th National Conference on Hydrocephalus, HA CONNECT? Recordings of the 19 live streamed sessions are now available! Register as a virtual attendee for $20 to access the 19 recordings!
Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Renaissance Newport Beach in Orange County, California. Book your hotel!
Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.
Inspired by her cousin, Jessica, and her journey with hydrocephalus, Katie, along with other family members, set out to run the LA Marathon in Jessica’s honor.
We continually strive to provide the best support and education services, and most current, comprehensive information and resources to assist our community. Take a brief survey and help us develop programs and services to better fit your needs.
SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.
The Adult Hydrocephalus Clinical Research Network officially launched in October, with a goal to deliver high quality, high impact hydrocephalus research.
In this installment of Debby’s video blog series, she discusses pregnancy and hydrocephalus, sharing from her personal experiences with her daughter, who has hydrocephalus, and the birth of her first grandchild.
The American Heart Association has granted a second-year resident in the Department of Neurology at the George Washington University School of Medicine and Health Sciences a $154K grant to study brain swelling and injury after an intracerebral hemorrhage.
Jon Rosen with the LA Kings Insider shares details about hydrocephalus and the upcoming LA Hydrocephalus Association WALK, co-sponsored by the LA Kings.
In this installment of Debby Buffa’s video blog series, “Through a Mother’s Eyes: The Journey with Hydrocephalus,” she motivates a young viewer by encouraging her to go for her dreams.
WCCB Charlotte features the 2nd Annual Greater Charlotte Hydrocephalus Association WALK which will take place on September 13, 2014, at the Elizabeth Park, Little Sugar Creek Greenway.
The News-Herald reports on A.J. Alley, an Allen Park, MI, resident who lives with hydrocephalus, will embark on a 30 mile walk on August 17, 2014, to raise awareness and funds for hydrocephalus and the Hydrocephalus Association.
The Hydrocephalus Association’s National Conference on Hydrocephalus offers adult attendees an opportunity to find the information, resources, and support they need to live confidently with their condition. Join us in Portland, Oregon, July 9-11, 2014.
In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares insights into our recent Research Workshop, “Biomarkers in Hydrocephalus,” held in St. Louis, MO, in late April, which brought together over 30 of the world’s leading experts in biomarkers.
Transitioning from Pediatric-centered Care to Adult-centered Care for Young Adults with Hydrocephalus
In this installment of the Hydrocephalus Association’s video blog series, “Through a Mother’s Eye’s,” Debby Buffa addresses the question of how to make the transition from a pediatric neurosurgeon to an adult medical team to manage on-going care for hydrocephalus.
The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.