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  • What is Hydrocephalus

        • About Hydrocephalus

        • Learn about hydrocephalus, a chronic, neurological condition marked by an excess accumulation of fluid in the brain, that affects over 1 million Americans.

        • About Hydrocephalus
        • Entendiendo La Hidrocefalia

        • About Normal Pressure Hydrocephalus

        • Normal Pressure Hydrocephalus, also known as NPH, typically affects older adults. Learn more about NPH, its symptoms, and how to treat and live with this chronic condition.

        • About Normal Pressure Hydrocephalus

        • Types and Causes

        • Hydrocephalus is a complex, chronic condition that can develop for a variety of reasons, sometimes as part of another condition. Learn about the different types and causes of this condition.

        • Types and Causes
          • Acquired Hydrocephalus
          • Congenital Hydrocephalus
          • Communicating and Non-Communicating Hydrocephalus
          • Normal Pressure Hydrocephalus

        • Newly Diagnosed

        • Have you or a loved one recently been diagnosed with hydrocephalus? Whether you are living with hydrocephalus or are a caregiver – we’re here to help you on this journey. We developed guides and next steps tailored to specific age groups and life stages.

        • Newly Diagnosed
          • Hydrocephalus in Pregnancy
          • Hydrocephalus in Infants and Children
          • Hydrocephalus in Adults
          • Normal Pressure Hydrocephalus
  • Treatments

        • Treatments

        • While there is currently no known way to prevent or cure hydrocephalus, there are three life-saving treatment options that require brain surgery.

        • Treatments
          • Shunt Systems
          • ETV and ETV with CPC

        • Preparing for Surgery

        • The thought of having to undergo brain surgery is frightening and can be physically and emotionally taxing. We are here to help.

        • Preparing for Surgery
          • Preparing for Shunt Surgery
          • Preparing for ETV Surgery

        • Treatment Complications

        • It is imperative to understand the signs and symptoms of a shunt or ETV failure. Things can change quickly therefore it’s critical to be prepared.

        • Treatment Complications
          • Complications of Shunt Systems
          • Complications of ETV
  • Research

        • About Our Research

        • Our research is focused on improving lives now and funding the breakthrough research of tomorrow.

        • About Our Research
          • Research Overview
          • Our Research Impact
          • Research Milestones
          • Sponsored Research Events

        • Get Involved In Research

        • Researchers may have the scientific expertise, but they need input from people living with hydrocephalus in order to ask the right questions and develop treatments that will benefit our entire community.

        • Get Involved in Research
          • Join the Hydrocephalus Patient Registry
          • Learn More About Ongoing Studies
          • Interested in Brain Donation?

        • Research We Fund

        • By connecting basic, translational, and clinical researchers, HA is accelerating hydrocephalus research and working to fulfill our mission

        • Research We Fund
          • The Clinical Networks
          • Leveraging Your Research Dollars

        • For Researchers

        • Our programs are designed to accelerate the movement of new therapies from bench to bedside. The Hydrocephalus Association will continue to push promising research forward.

        • For Researchers
  • Daily Life

        • Daily Life

        • Learn how to manage the day to day symptoms and associated problems you might encounter on your journey with hydrocephalus.

        • Daily Life
          • Managing Day-to-Day Challenges
          • Navigating Your Care
          • Related Health Conditions
          • Healthy Living
          • Hydrocephalus Stories from our Community

        • Life Transitions

        • There are many milestones where hydrocephalus will play a role in your planning and the decisions you make. Embrace these milestones fully informed and with confidence.

        • Life Transitions
          • Transitioning from Pediatric to Adult Care
          • High School
          • College
          • Transitioning to Independence

        • Caring for Your Child

        • Gain the tools and resources to help you advocate for your child, make informed decisions, and manage your child’s daily needs.

        • Caring for Your Child
          • As Your Child Grows
          • Navigating Your Care
          • Related Health Conditions
          • School

        • Living with NPH

        • A diagnosis of NPH can be complex and frustrating. Here you’ll find resources that will enable you to make informed decisions and have more control of your life.

        • Life with NPH
          • Navigating Your Care
          • Related Health Conditions
          • NPH and Rehabilitation Services
          • Healthy Living: NPH
          • Ask the Expert: NPH Series
          • Thriving with NPH
  • Help & Support

        • Resources

        • The Hydrocephalus Association is your trusted source for information at every stage of life. We offer resources that provide life-changing support to people living with hydrocephalus and their loved ones.

        • Resources
          • Find a Doctor
          • Webinars
          • HydroAssist™ Mobile App
            • About HydroAssist® Mobile Application
            • HydroAssist® Development Team
            • HydroAssist® Mobile Application Support Page
            • HydroAssist® Privacy Policy
            • HydroAssist® Licensing Agreement
          • Patient and Family Resources
          • Newsletters
          • Hydrocephalus Stories from our Community
          • COVID-19 Guidance for People Living with Hydrocephalus

        • Get Support

        • The Hydrocephalus Association is here to help. We are eager to guide you to the support you need for your particular situation.

        • Get Support
          • Helpline
          • HydrocephalusCONNECT Peer Support
          • Find a Community Network

        • Programs & Services

        • The Hydrocephalus Association offers specialized programs and services to support anyone impacted by hydrocephalus at every stage of life.

        • Programs and Services
          • National Conference
          • Local Educational Events
          • Webinars
          • Summer Camp

        • Scholarship Programs

        • The Hydrocephalus Association’s Scholarship Program provides financial assistance to capable and promising young adults who live with the ongoing challenges and complexities of hydrocephalus.

        • Scholarship Program
          • How to Apply
          • Scholarship Instructions
          • About Scholarship Funding
          • Scholarship Recipients
  • Get Involved

        • Give

        • Help us change the future of hydrocephalus by supporting the Hydrocephalus Association!

        • Give
          • Shop and Support
          • Become a Corporate Sponsor
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          • Make a Stock Donation

        • Fundraise

        • Help support our mission by registering for a WALK to End Hydrocephalus near you, sponsoring our WALK program, or starting your own fundraiser!

        • Fundraise
          • Sponsor a WALK
          • Walk to End Hydrocephalus
          • Find a WALK Near You

        • Participate

        • Take an active role in supporting our mission and connect with others impacted by hydrocephalus. Explore the many ways you can get involved!

        • Participate
          • Become a Volunteer
          • Help Raise Awareness
          • Connect with Us
          • Find a Local Event

        • Advocate

        • The Hydrocephalus Association is the leading voice for the hydrocephalus community on Capitol Hill. Join our advocacy efforts.

        • Advocate
          • Our Advocacy Strategy
          • Advocate With Us
          • Our Advocacy Impact
          • Congressional Hydrocephalus Caucus
          • Advocacy Toolkit
  • HA Blog
  • News Releases
  • Research Updates
  • Personal Stories

Posts Tagged ‘2012’

Voices from Our Community: Milton Newman Shares His Story of NPH

By Amanda Garzon | September 7, 2012

Fog is Lifted After 15 Years of Confusion and Misdiagnosis Milt Newman’s retirement was not living up to expectations due to a slow progression of seemingly inexplicable mental and physical…

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Voices from Our Community: Abby Shares Her Life Experiences With Hydrocephalus!

By Amanda Garzon | September 3, 2012

By: Abby Wood Hi!  My name is Abby.  I turned 12 years old at the end of August and this is a snapshot of my life.  I was born in…

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scholarship, hydrocephalus

Announcing our 2012 Hydrocephalus Association Scholarship Recipients!

By tom | August 2, 2012

We are pleased to announce the 2012 Hydrocephalus Association Scholarship Recipients. The scholarship program marks its 18th year and we are very proud to honor these amazing young adults. Despite…

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Congress Discusses Hydrocephalus and our Military

By paul | July 19, 2012

by Paul Gross, HA Chairman of the Board of Directors Yesterday, hydrocephalus was a hot topic in Congress during the debate over the annual defense spending bill. Experts believe that…

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Hydrocephalus Association Brings its Message to Capitol Hill!

By tom | July 6, 2012

On Thursday, the 28th of July, the second day of our conference, we held our second Advocacy Day on Capitol Hill, “Climbing Capitol Hill for a Cure.”  Hundreds of members…

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HA Partners with HCRN to Promote Groundbreaking Clinical Research

By tom | June 4, 2012

Hydrocephalus Association (HA) and the Hydrocephalus Clinical Research Network (HCRN) have signed a partnership agreement that will ensure the continuation of HCRN’s hydrocephalus research.

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Advocacy Day in Washington, DC: Climbing Capitol Hill for a Cure!

By JennBechard | February 29, 2012

The Hydrocephalus Association hosts their first Advocacy Day day which was held in 2006 during our 9th National Conference on Hydrocephalus in Baltimore MD

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Hydrocephalus Association’s Resident’s Prize: Dr. Ashley G. Tian

By tom | February 16, 2012

One way the Hydrocephalus Association promotes research and leadership in hydrocephalus is through our annual Resident’s Prize.

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Tributes to a Passionate NPH Physician Advocate — The Passing of Harold O. Conn, MD

By tom | January 26, 2012

Harold O. Conn, MD was a world-famous doctor specializing in diseases of the liver.  After his retirement, he developed Normal Pressure Hydrocephalus (NPH) and thus embarked on his second career…

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The mission of the Hydrocephalus Association is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. We will accomplish this by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus.

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