Max was born with spina bifida, hydrocephalus & Arnold Chiari Malformation II, but that doesn’t define him. He’s three years old and thriving!
He’s a little brother, friend, student, activist, and new found frame football player. He’s learning the ukulele and loves doing stunts with his walker and wheelchair. Over time, Max has become one of the many faces of children living with disABILITIES in Oklahoma. He helped the Children’s Hospital at OU Medicine blow out the candle to celebrate the one-year anniversary of OU Medicine being a locally-owned and operated healthcare enterprise. His therapy center, Sensational Kids, Inc., uses a picture from a therapy session where Max first rode an adaptive bike as their advertisement in our local family magazine. Recently Max discovered his love of soccer and with little adaptation, he’s found that frame football is in his future.
We hope to raise Max to be comfortable with who he is and confident in his abilities, to advocate for himself and others, and to always do his best. His charming personality together with his determination inspires people. He’s truly a special little boy and he’s fortunate to have so many friends and community members supporting him.
There’s a lot we can do to make society more accessible to those with disabilities. More often than not it’s simply pointing out the barriers, a solution for change and a willingness to make it happen. In fact, we’re currently working with our State Representative, Mickey Dollens, on Max’s Law; HB 3952, a bill that would require adult-size changing tables in certain publicly funded buildings and facilities, it will improve accessibility for all Oklahomans.
Max is our inspiration for everything. As his parents, we couldn’t be prouder of him!
(As told by Audra D. Beasley, mom to Max)
Tell us about your journey with hydrocephalus!
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