Do you have difficulty explaining your condition to others? Ever felt like you wanted to speak up for yourself with your peers, doctor, teachers, coaches, or others but you didn’t know how or think you could do it? We are here to tell you that, YOU CAN! You are your best advocate. The first step toward becoming a self-advocate is building self-knowledge and confidence.
In our latest webinar, Speak Up: Owning Your Own Condition, held on Thursday, April 30, 2015, Teens Take Charge Advisory Council member, Tess Jacobsen, presented tips, resources, and solutions on how to own your condition and take charge. She shared her own courageous experiences of speaking to various audiences, and tips on how to become an advocate for yourself. Attendees walked away feeling empowered and equipped with tools to use in their everyday encounters with others. Missed it? To listen to the full webinar recording, click here.
This webinar is ideal for teens and young adults who are enthusiastic and want to learn how to speak about hydrocephalus and become advocates for themselves and others.
Tess Jacobsen, Teens Take Charge Advisory Council Member, is a junior at San Ramon Valley High School and lives in in Walnut Creek, CA. She was diagnosed with hydrocephalus at birth after an intraventricular hemorrhage. She has overcome strabismus and seizure disorder, and now is on her high school golf team. Tess has been active in scouting since grade school. She is presently working on her Girl Scout Gold Award, the highest honor in the program. Her project, Stream to Advocacy, is building on her personal experiences with hydrocephalus, IEPs and self-advocacy to develop personal advocacy programs for other teens with disabilities.
Speaking as a teenager and high school student with hydrocephalus, Tess encouraged young people to learn as much as they can about their hydrocephalus, actively participate in their educational and medical meetings and be wary of those who
“You are your best advocate. Know yourself, know your condition and know how to speak up for yourself. . . . Above all, be proud of who you are!”
We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology and more.
Our webinar series features presentations from medical professionals, researchers and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event.
Please contact the Hydrocephalus Association by telephone (888) 598-3789 or via e-mail at Jennifer@hydroassoc.org.
This Webinar Series is made possible through the generosity of our industry partners: The Batterman Foundation, Medtronic, Aesculap and Sophysa who we thank for supporting this important program!