Research Overview
Research by dedicated scientists and clinicians from a wide range of disciplines is expanding our knowledge of hydrocephalus, translating discoveries and insights into vital new treatments and clinical care practices for people living with hydrocephalus.
Our Mission & Strategy
The mission of our Research Program is to fund research that improves the quality of life for people living with hydrocephalus, and ultimately to find a cure. To accomplish this mission, the Board of Directors established three priority areas:
Connecting Basic, Translational, and Clinical Researchers
The Hydrocephalus Association Research Program is focused on advancing promising avenues of hydrocephalus research and building a committed and connected hydrocephalus research community. Through the support of three research networks and our patient-powered registry, HA has created a research ecosystem that improves the lives of those with hydrocephalus now, while identifying and testing new hypotheses and therapies. By connecting basic, translational, and clinical researchers, HA is accelerating hydrocephalus research and working to fulfill our mission.
Research Networks and the Patient-Powered Registry
We support three networks and a patient-powered registry that accelerate high quality, high-impact hydrocephalus research.
Hydrocephalus Clinical Research Network (HCRN)
A network of fourteen children’s hospitals that conduct clinical research on hydrocephalus.
Adult Hydrocephalus Clinical Research Network (AHCRN)
A network of eight hospitals that conduct clinical research focused on adults with hydrocephalus.
Hydrocephalus Association Network for Discovery Science (HANDS)
A platform for both communication and collaboration among hydrocephalus basic and translational researchers with a focus on mentorship, innovation, and shared infrastructure. Through HANDS we award research grants to individual investigators conducting innovative research and also hold research conferences and workshops that are designed to promote collaboration and identify promising new opportunities.
Hydrocephalus Association Patient-Powered Interactive Engagement Registry (HAPPIER)
HAPPIER, an online database created to bring the patient perspective to hydrocephalus research. HAPPIER will help accelerate hydrocephalus research by providing patient-generated and patient-centered data to the research community.
Announcing the 2023 Hydrocephalus Association Innovator Award Recipients
In medical research, innovation is the catalyst for change, the driving force behind medical breakthroughs…
Read More >Anuncia Medical, Inc., Announces Published Data with Clinical Outcomes Using the ReFlow™ Ventricular System In-Line with Hydrocephalus Shunts
Anuncia Medical, Inc., a company advancing innovations for cerebrospinal fluid (CSF) management systems and neurocritical care haspublished an article in the journal Pediatric Neurosurgery reporting the use of the ReFlow™ Ventricular System with Hydrocephalus shunts in patients suffering from chronic shunt occlusions.
Read More >Study Finds ShuntCheck is an Effective Aid for Emergency Room Doctors
Study Finds ShuntCheck is an effective aid for emergency room doctors in determining the need…
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