Read About Transition Care in Our Hydrocephalus Resource Library

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By Tom Smith, HA Adult Services & Outreach Coordinator

A paper by Harold Rekate, MD, The Pediatric Neurosurgical Patient: The Challenge of Growing Up, published in Seminars in Pediatric Neurology, Vol. 16, 2009 discusses the difficulties faced by children born with hydrocephalus and Spina Bifida as they move from the coordinated care of pediatric facilities to the world of adult care. The article also explores the reasons for these challenges and discusses the need to take steps ahead of time in order to plan for this transition.

This article can be found in the Hydrocephalus Resource Library and is a wonderful companion to the Health Care Transition Guide for Teens and Young Adults with Hydrocephalus.

1 Comments for : Read About Transition Care in Our Hydrocephalus Resource Library
    • R. Kerkensen
    • January 29, 2012
    Reply

    I was glad to see this article highlighted. I will never forget the fear I felt when I realized the doctor who had treated me since birth was aging and wouldn’t be able to operate the next time I needed it. I would encourage parents to support their kids through this transition period, it is nerve racking to navigate alone.

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