Sisters Stephanie (Buffa) Vogt and Sarah Buffa have the same color hair, the same love of math, and the same brain disorder. They both have hydrocephalus, a life-threatening neurological condition that can only be treated with brain surgery. Between the both of them, they have endured 36 brain surgeries to treat their condition. Hoping to raise money for research for a cure, Stephanie and Sarah will join other families from across Missouri at the Hydrocephalus Association (HA)’s St. Louis WALK to End Hydrocephalus, which is virtual this year due to the coronavirus pandemic. The Virtual WALK will take place online on Saturday, Oct. 17th.
October 14, 2020
Rep. Josh Gottheimer (NJ-5) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Josh Gottheimer’s support of the over one million people living with the condition.
October 1, 2020
Imagine living your entire life with headaches and then finding out that they were due to an incurable brain disorder that can only be treated with brain surgery? That’s what happened to Lori Logan, a local mom who was diagnosed with hydrocephalus at age 46. Hydrocephalus is a life-threatening neurological condition that affects over 1 million Americans. To date, Lori has endured four brain surgeries to treat her condition and she fears it may not be her last. That’s why she helped organize the New Orleans WALK to End Hydrocephalus taking place on October 3 at Heritage Park.
September 30, 2020
What if brain surgery was the only way to stay alive? For the over 1 million Americans living with hydrocephalus, the leading cause of brain surgery in children, it is. That’s why the U.S. House of Representatives has recognized September as Hydrocephalus Awareness Month. Hydrocephalus is a chronic neurological condition that has no cure and can only be treated with brain surgery. Many people with hydrocephalus suffer from other co-occurring conditions, particularly seniors who have Normal Pressure Hydrocephalus. This puts them at a higher risk for severe illness from COVID-19.
September 28, 2020
Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now at 4 years old, Jacob has endured six brain surgeries to treat his condition. That’s why his mom Jodi hopes to raise much-needed funds for research this Saturday Sept. 12 at the Virtual Baltimore WALK to End Hydrocephalus.
September 10, 2020
Bergen County Board of Commissioners Issues Resolution Naming September Hydrocephalus Awareness Month
Today there are over 1 million Americans living with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. To raise awareness of this condition, the Bergen County Board of Commissioners adopted a resolution naming September Hydrocephalus Awareness Month. The resolution was introduced by Bergen County Commissioner Steven A. Tanelli.
September 8, 2020
Lucky McMahon was just one day old when he had his first brain surgery to treat his hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now, at five years old, Lucky has endured five brain surgeries and 10 other surgeries to treat other related conditions. That’s why his mom Paula McMahon is on a mission to raise awareness of his condition and raise much-needed funds for research by organizing the first WALK to End Hydrocephalus in Decatur, IL.
January 23, 2020