This week, Congressman TJ Cox (D-CA) announced that he has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Representative Cox’s support for our community. His action reflects a welcome commitment to working with his colleagues in Congress to find practical, bipartisan solutions for the over one million Americans living with this condition.
November 21, 2019
Dreame Saliyah Monplaisir was just 3 months old when she had her first brain surgery to treat her hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. As is often the case, Dreame’s family had no idea what hydrocephalus was or that it could mean multiple brain surgeries over the course of her life. Now, her grandmother, Tammara Tillman, is on a mission to increase awareness of the condition and raise money for a cure by taking part in the New York City WALK to End Hydrocephalus Saturday, Nov. 9 at Hudson River Park Pier 63.
October 30, 2019
Medical Experts and Patients to Educate New Jersey Families About Brain Disorder That Affects Over 1 Million Americans
Dementia, gait disturbance, and incontinence. Typically, when older adults have these symptoms, they’re told they have diseases like Alzheimer’s, Parkinson’s or a host of other illnesses, when in many cases they are suffering from a treatable condition called Normal Pressure Hydrocephalus (NPH). Join the Hydrocephalus Association at its first Hydrocephalus Education Day in Neptune, NJ on Nov. 9th, where medical experts and patients will discuss NPH symptoms, and share information about other forms of hydrocephalus.
October 24, 2019
Adrianna Garibaldo’s son Aiden was just 8 weeks old when he had his first brain surgery to treat his hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Like many families impacted by this condition, Adrianna had no idea what hydrocephalus was or that it could mean multiple brain surgeries over the course of Aiden’s life. Hoping to increase awareness of the condition and to raise money for a cure, Adrianna is joining hundreds of local families at the Orange County WALK to End Hydrocephalus on Oct. 12 in Huntington Beach, CA.
September 30, 2019
Today, Representatives Chris Smith (R-NJ) and Lloyd Doggett (D-TX) joined forces to introduce H. Res. 605, a bipartisan resolution supporting Hydrocephalus Awareness Month. As co-chairs of the Congressional Hydrocephalus Caucus, Doggett and Smith are leading efforts to raise awareness of the condition on Capitol Hill.
September 27, 2019
What if brain surgery was the only way to stay alive? For children like Khoy Blasi-Diggs, Jr, it is. Khoy has hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Hoping to raise money for a cure, Khoy’s family will join hundreds of other DC area families at the National Capital WALK to End Hydrocephalus Saturday, Sept. 28, at the Lincoln Memorial.
September 23, 2019
Brothers Ryder and Kai Bruen not only share the same birthday, they also share the same brain disorder. The 13-year-old twins have hydrocephalus, a life-threatening neurological condition that can only be treated with brain surgery. Between the both of them, they have endured 18 brain surgeries to treat their condition. Hoping to raise money for research for a cure, Ryder, Kai, and their parents, Heather and Jason Bruen, will take part in the Houston WALK to End Hydrocephalus on Saturday, Sept. 21 at Buffalo Bayou Park.
September 12, 2019
Today there are over 1 million Americans living with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. In September through November, individuals and families impacted by this condition will come together at a WALK to End Hydrocephalus in 44 cities across the country to raise awareness and funds for a cure. The WALKs kick off Hydrocephalus Awareness Month, observed each year in September.
August 22, 2019
When your child lives with a chronic brain condition that has no cure, life can seem daunting at times. Candace Corner and husband Johnny Miller, whose daughter Mari June was diagnosed with hydrocephalus at three weeks old, decided to turn their fear and frustration into action. That’s why on Saturday, Aug. 17, the Corner-Miller family will participate in the Chicago WALK to End Hydrocephalus taking place at Soldier Field.
August 13, 2019
Emmy Award-winning comedian and host Conan O’Brien will headline “In Stitches, a Night of Laughs,” an evening of comedy and cocktails to raise awareness and funds to find a cure for hydrocephalus, a chronic brain condition that affects 1 million Americans. “In Stitches, a Night of Laughs” will take place Thursday, April 11 at 6:30 pm at the Avalon Hollywood in Los Angeles, CA.
April 1, 2019