Sophia

My name is Sophia Rose. I am 27 years old, and I was diagnosed with hydrocephalus after I was born due to a hemorrhagic stroke. I had my first ventriculoperitoneal (VP) shunt placed at three weeks old and have had only one revision, at the age of nine. 

As a child, I also had a seizure disorder, which I have since outgrown. Due to my hydrocephalus, I also have cerebral palsy (CP). For years, I wore braces on my feet and attended physical therapy (PT).  

Inspired by my childhood experiences, I decided to learn more about health and wellness so I could help others with similar or different conditions. I earned a bachelor’s degree in Health and Nutrition from Arizona State University and obtained multiple certifications in personal training. After completing my studies, I launched my own business and opened a personal training gym in Tuckahoe, NY called SRG FITNESS. I am also the author of “Strength Resilience, Growth: How I Defied Physical and Mental Limitations and Took Control of My Future,” where I share my journey growing up with these health conditions.

At 15 years old, I was also diagnosed with polycystic ovarian syndrome (PCOS). My doctors explained that my PCOS was caused by the placement of my shunt. It puts pressure on my pituitary gland and hypothalamus, which has led to significant hormone imbalances. Over the years, my PCOS has worsened, and later I found out I also have endometriosis. 

Years of hormonal imbalances have affected many areas of my body, causing symptoms such as hair-loss and severe joint pain.  

Along with hormonal imbalances, I have developed small intestinal bacterial overgrowth (SIBO), a chronic condition in which an excess of harmful bacteria grows in the small intestine. As a result, I struggle daily with excessive bloating and stomach distention. No matter what or how healthy I eat, my stomach bloats so big that it becomes hard to breathe, and my stomach looks like that of someone who is nine months pregnant. I experience constant pain, weight gain due to inflammation, bloat, and water retention, even though I’m unable to eat much. These ongoing symptoms also take a toll on my mental health, contributing to anxiety and depression. 

I share my story in hopes of helping others living with hydrocephalus, PCOS, endometriosis, SIBO, or any other condition they may be facing. I feel fortunate enough to be able to work with clients who have a wide range of health challenges and encourage them to keep fighting and believing in their strength. 

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