People
Joseph
Joseph was diagnosed with hydrocephalus in infancy and continues to pursue his goals in education, work, and family life while navigating its challenges.
Nancy
Nancy was born with hydrocephalus and spina bifida and continues to use her story to challenge stereotypes, raise awareness, and inspire others.
Myles
Myles was diagnosed with hydrocephalus before birth and spent 44 days in the NICU. After seven surgeries, he is now thriving, running, and inspiring his family.
Jaylani
Jaylani’s mother shares her daughter’s congenital hydrocephalus journey, from diagnosis at one month old to successful ETV surgery and a thriving recovery.
Victoria
Victoria was diagnosed with hydrocephalus before birth due to aqueductal stenosis and continues to thrive through every challenge.
Zoe
Zoe was diagnosed with congenital hydrocephalus in utero and uses her art, writing, and filmmaking to raise awareness and inspire others.
Hilda-Ann
Hilda-Ann was diagnosed with hydrocephalus in infancy and has turned a life of challenges into a journey of resilience, advocacy, and purpose.
Layla
Layla was diagnosed with hydrocephalus after a brain bleed. Through surgeries and challenges, she continues to thrive with resilience.
Laura
Laura was diagnosed with hydrocephalus caused by Dandy-Walker syndrome and has turned lifelong challenges into resilience, advocacy, and hope.
In Memory of Susanne
Susanne was a lifelong nurse who lived with MS and hydrocephalus, and whose life reflected strength, resilience, and dedication to caring for others.
Catherine Veilleux MD, MSc – 2026 Kenneth McKenzie Award
2026 AHCIS & HA Kenneth McKenzie Award Project title: Effectiveness of Endoscopic Third Ventriculostomy for…
Syreniti
Syreniti was born with hydrocephalus and defied expectations, using her journey to fuel her passion for helping others.
Olivia Thomas
Neuropsychiatric Symptoms Associated with Ventriculoperitoneal Shunts: A Multicenter Trinetx Analysis
Jayne Crouthamel
The Effects of Hydrocephalus on Cerebellar and Brainstem Size and the Subsequent Effects on Gait and Balance
Gwendolyn Sebring
AAV-Driven Choroid Plexus Epithelial Cell Ablation Significantly Reduces Ventricular Volume and Improves Survival in a Mouse Model of Neonatal Hydrocephalus
Sarah Fink & Hannah Peterson
CSFlow: Applications of Zwitterionic Polymers to Increase the Biocompatibility and Hydrophilicity of Silicone Hydrocephalus Shunts
Anushka Acharya
Initial Results from SCEMPI: An Early Phase Clinical Trial for Neurorepair with High Dose Melatonin and Erythropoietin for Very Preterm Infants with IVH