People

Harry

April 4, 2025

Misdiagnosed with Parkinson’s, Harry fought for the right diagnosis—NPH. Now, he’s rebuilding his life with therapy, community, and renewed independence.

Marcio

April 4, 2025

From overcoming medical hurdles in Brazil to pursuing a degree in medicine, Marcio’s hydrocephalus journey is one of resilience, perseverance, and hope.

Janay

April 3, 2025

Diagnosed at 8, Janay has endured 200+ shunt revisions. Now, she’s advocating, supporting others, and refusing to let hydrocephalus define her.

Colton

April 3, 2025

Born premature, Colton faced hydrocephalus and multiple shunt surgeries. Now, at almost three, he’s thriving and two years shunt failure-free!

Sarah

March 26, 2025

Diagnosed with hydrocephalus at four months old, Sarah has faced surgeries and challenges. Now a mother, she embraces each day with strength and purpose.

Ayana

March 20, 2025

Despite enduring 15 brain surgeries and life-threatening complications, Ayana shares her story to inspire hope and strength in others on the hydrocephalus journey.

Born in the late 1960s, Bill faced early challenges with hydrocephalus but went on to earn a master’s degree, teach, and become a parent, grateful for his stability while recognizing every journey is unique.

Savannah

February 11, 2025

Savannah introduced her mother to hydrocephalus 13 years ago and has since been her greatest teacher. Her resilience and determination inspired her mother to become a Teacher of Students with Visual Impairments, turning challenges into purpose.

Jeffrey Schaffert, PhD

February 4, 2025

Neuropsychological Phenotypes of Idiopathic Normal Pressure Hydrocephalus

Albert Isaacs, MD, PhD

January 23, 2025

Comprehensive Epidemiological and Economic Assessment of Non-Normal Pressure Adult Hydrocephalus (NNPAH) in the United States

Diane

January 7, 2025

At 70 years old, Diane was diagnosed with NPH after struggles with falls and incontinence. Following ventriculoperitoneal (VP) shunt surgery, she has made steady progress, moving from a walker to a cane, supported by her husband Alan and family as she embraces life’s challenges and small victories.

Dereck

January 3, 2025

Dereck’s journey with hydrocephalus has made him resilient, navigating over 500 surgeries and countless challenges. Despite unexpected turns, he finds fulfillment in volunteering and inspiring hope in others.