Other Useful Resources

Medical Centers & Doctors

Beth Israel Medical Center – The INN’s official site provides general information about pediatric and adult neurosurgery, along with specific informantion on hydrocephalus and associated disorders.

Mayo Clinic Department of Neurosurgery – This site features an overview of the clinic’s services, a list of doctors, an online appointment booking services, and more.

General Resources

Dandy-Walker Alliance – This alliance is an all-inclusive organization including people directly and indirectly affected by Dandy-Walker who share an interest in educational, informational activities and supporting nonpartisan research to increase public awareness Dandy-Walker syndrome.

FollowMe – This site is a one-stop shop designed to help with web-based management of medical records. FollowMe is secure and user-friendly.

Hydrocephalus Clinical Research Network (HCRN) – The Hydrocephalus Clinical Research Network (HCRN) has been established by philanthropic funding to conduct multi-institutional research (clinical trials and observational studies) on pediatric hydrocephalus.

The mission of the Hydrocephalus Clinical Research Network is to dramatically improve the lives of children suffering from hydrocephalus by conducting important, and field-changing, multi-center clinical research.

International Federation for Spina Bifida and Hydrocephalus – The International Federation for Hydrocephalus and Spina Bifida (IF) is the worldwide umbrella organization (NGO) for hydrocephalus and spina bifida. It was established in 1979. Today the IF’s membership includes national umbrella organizations for hydrocephalus and spina bifida in over 40 countries.

National Institutes of Health Hydrocephalus Links – This list of hydrocephalus links is put together by the National Institutes of Health, in conjunction with Medline.

Neurosurgery://On-Call: Hydrocephalus FAQ – This provides a list of frequently asked questions about hydrocephalus (and their answers), from the official site of the American Association of Neurological Surgeons and Congress of Neurological Surgeons.

Spina Bifida Association – This site covers everything from vital information about the B-vitamin folic acid for women affected by a neural tube defect to information who might become pregnant, to strategies to help improve the quality of life for people living with spina bifida.

DrugWatch.com – DrugWatch’s site features a comprehensive list of drugs and medications that are currently on the market, or were previously available worldwide.


Change this in Theme Options
Change this in Theme Options