We need your help to make sure your Representative in Washington, DC knows how important it is to expand research for hydrocephalus. The Hydrocephalus Association has identified four key Congressmen who help decide how the federal government funds research into new treatments for diseases such as hydrocephalus.
Congress is making decisions now on how to allocate health care funds for next year. If you or somebody you know is a constituent of one of the following Congressmen, or a resident of his state, please contact them by clicking on their link and let them know how important it is to you and your family to support expanded research for hydrocephalus.
- Jack Kingston, Georgia’s 1st Congressional District
- Rodney Alexander, Louisiana’s 5th Congressional District
- Mike Simpson, Idaho’s 2nd Congressional District
- Denny Rehberg, Montana’s Congressman at Large
Here is an example of what to say to your Congressman.
Script for emailing your Representative:
I am here in (your home town/state) asking for your support for expanded research for hydrocephalus – a condition caused by excessive fluid in the brain.
Hydrocephalus is a brain condition that affects approximately 1 million people in the US (including me, my son, my daughter, my spouse, etc.)
In addition to the 1 in 500 babies born with hydrocephalus each year, there is a growing incidence among Iraq/Afghanistan soldiers suffering traumatic brain injury (TBI), and a growing recognition that people develop the condition as they age, which often masquerades as dementia or Alzheimer’s.
Many people think hydrocephalus is quickly curable: implantation of a shunt drains away the excess fluid. In fact, shunt failure is a lifelong, dangerous and very costly medical problem for hundreds of thousands of people. Shunts are 50 year old technology that fail frequently, causing costly additional surgeries; alternative treatment is essential.
Since you were a cosponsor of the legislation that designated a special month as hydrocephalus awareness month, I am asking you to also support expanded research for hydrocephalus in the Labor, Health and Human Services Appropriations report. Can I count on your support?
*Mention your home town