It’s Time to Start Taking Action!

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Hydrocephalus Action NetworkWe are thrilled to be energizing our grassroots Hydrocephalus Action Network (HAN) made up of volunteers like you who want to make a difference for the hydrocephalus community with our elected officials. Together, we will become a force to be reckoned with on Capitol Hill.

If you have already signed up to be a part of HAN, thank you! You are on our email list to receive action alerts, like this blog post, as well as other advocacy related updates and calls to action. If you have not yet had a chance to sign up, please register for HAN here: Join the Hydrocephalus Action Network!

It’s time to start taking action as a network. We have a few homework assignments for you to complete over the next few weeks. Don’t worry, they’re quick and easy and no one’s grading them! Once you’re done, you’ll be well on your way to being a star advocate.

ASSIGNMENT 1: Get to Know the Issues.

The first step is to familiarize yourself with the Hydrocephalus Association’s current legislative priorities. We’ve put together summaries of key legislation and issues. Reading through these summaries will prepare you to take action on these issues moving forward. And if you have any questions, we are always here to help.

ASSIGNMENT 2: Develop your Personal Story.

Now that you’re familiar with the issues, it’s time to develop your story. Having a personal narrative to demonstrate how hydrocephalus has affected your life or that of those you love is crucial when speaking to legislators. Telling your story gives the issues a face and a name and will help you make your case more compelling. To develop your story, we’ve made a simple worksheet, which will help you craft your personal experiences into a concise and meaningful story to share with legislators.

ASSIGNMENT 3: Familiarize yourself with the Advocacy Toolkit.

The Hydrocephalus Association designed the Advocacy Toolkit to explain what being an advocate really means. It includes resources on the most effective ways to communicate with your legislators, the public and the media on these important policy issues. Moving forward, we will be working with you to take all of these actions and more, so familiarizing yourself with the toolkit now will give you a great head start.

Again, thank you for joining us as an advocate. We look forward to working together to deliver the hydrocephalus community’s message to Capitol Hill — and beyond.

If you have any questions, please do not hesitate to email us at

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