Insurance Denials Block Woman with Hydrocephalus from Receiving Care

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Nikki Batsford fights state insurance denials in order to be seen out of state by experts in hydrocephalus who could relieve some very distressing symptoms of the condition. Mark Patinkin of the Providence Journal shares her battle.

Click here to read the full article.

7 Comments for : Insurance Denials Block Woman with Hydrocephalus from Receiving Care
    • Theresa Satterfirld
    • November 8, 2017

    So hard to believe that a doctor makes the comment that every state has good doctors!! REALLY! We are sitting at Jefferson in Philadelphia because the Neurosurgeon in Delaware told my husband his PAs in De were getting weary dealing with him so he said come back in4 months and we will reassess your health!! Meanwhile he gets headaches every day! I’ve been told by many nurses that there are no good Neurosurgeon in Delaware!!!

  1. Reply

    You Might have a constitutional right to life and liberty, which would be the best help you can obtain. Contact a lawyer willing to take this to this to federal court. You would be helping everyone in the 700,000 with the misnameded NPH. its an orphan disease.

    • Veralyn
    • May 17, 2017

    It is a very sad statement of the condition of our government that in a developed nation such as ours this allowed to happen. I blame the ACA and the botched efforts to revamp it for not putting into place laws that would make health insurance companies provide coverage for care that would mean the difference between life and death no matter what!

      • DR
      • July 18, 2017

      its not the ACA. It is the insurance companies… Just wait and see how much worse it will be with ‘trumpcare’

      being treated out of state does not make much sense in a country where every state has good physicians

      • Joe Galatha
      • December 31, 2017

      Please do not embarrass yourself further with baseless and unwarranted demonization of the ACA. I will be glad to type out at least 10,000 words and however many hours of your life you would like to invest so that you may read a story of how 3 for-profit insurance companies and my employer, not to mention the 7 neurosurgeons who saw me in the E.R. all missed my symptoms and came to the wrong diagnosis, thus robbing me of a year of my life and ensuring a truckload of misery for myself and my wife.

      I flirted with suicide because the well-paid private-practice neurosurgeons and their hospitals spent $100,000 of somebody’s money and a year of my life mis-diagnosing what a better neurosurgeon picked up on from reading ONE CT scan in 15 minutes. The for-profit system spent $100,000 and 11 months misdiagnosing a problem that was solved in 2 weeks with one $20,000 surgery.

      I signed 3 “Do-Not-Resuscitate” orders during that year while they tapped my shunt, performed a 48-hour monitor (but never recorded the results) and finally said, “Your shunt is working, surgery will not solve your problem.

      I have now had that surgery and I am doing remarkably better.

      I do not accept, and I have little tolerance for people shrieking and howling about the ACA when people can’t seem to find the flaws in our for-profit system which does it’s own magnificent job of wasting money and making the wrong diagnosis – no “big government” required.

      I’m much better now, thank you. Meanwhile Aetna, my employer, and BC/BS left me with a $6,000 out-of-pocket maximum to pay, but denied me any Short-term or Long-term disability compensation in a year when I haven’t had a paycheck since May 1. Tell me again why I should be upset about the ACA when the for profit system made this much money from me, and protected me as poorly as they did in 2017?

      Perhaps if you started seeing things objectively instead of presumptively assuming that the ACA is the root cause of all that it is not to blame for, the discussion might be more productive

        • Kathy Byrne Mcintyre Davidson
        • February 25, 2018

        Just curious if hospital allows a Dr with fake credentials to operate on you and then you go into shunt failure can something legal be done to claim compensat

    • Theresa Terlouw
    • May 12, 2017

    SHAME ON YOU STATE INSURANCE!!!!! HOW DARE YOU TO DENY THE THIS WOMAN INSURANCE COVERAGE FOR HYDROCEPHALUS!!!! I suffer from Hydrocephalus and it’s a horrible disease!!! You the INSURANCE company should not deny anyone suffering disease,!!!!!

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