The Hydrocephalus Association (HA) started as a support group in 1983 when two of our founding members, Russell and Emily Fudge, found themselves feeling frustrated, confused, and alone after their son’s second shunt revision. With the help of their son’s neurosurgeon, they were united with other parents looking for answers and support.
For the last 30 years, HA has been the trusted source that patients, families and health professionals turn to for support and information. One of the ways HA is able to provide direct support to individuals who have been diagnosed with hydrocephalus, as well as to their family, friends and caregivers, is through our local support groups.
Following in the footsteps of our founding members, our support groups thrive throughout the country. This past year, the Hydrocephalus Association launched 8 new support groups and hosted 77 meetings in 25 states. While many of us venture to our first support group meeting looking for answers and for someone…anyone…who understands what we are going through, we often come back for the community and life-long friendships. Support groups host guest speakers, celebrate milestones and achievements of its members, support individuals in need, and spark new friendships. All of this is made possible only through the dedication of our entirely volunteer team of support group leaders.
In addition, to our local support group meetings, HA initiated numerous closed groups on Facebook. These are overseen by local volunteers, support group leaders and WALK chairs. These closed groups are a setting where only members of the group can post to the wall or see what is posted. Similar to support group meetings, this new online forum provides a space for individuals to connect, share information give and receive support 24/7.
Support Groups are a valuable resource and we are profoundly grateful to our volunteers for their selfless dedication, time and effort.
We hope you can join us at a meeting in 2013 and don’t forget to connect with your local support group on Facebook!
Stay tuned for upcoming meetings by visiting our Upcoming Events Calendar.
For a list of HA Support Groups and their Facebook pages, visit the HA Community Network page on our website.