Hydrocephalus Association Announces New Chief Executive Officer

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Largest Hydrocephalus Patient Advocacy Organization Selects Diana Gray to Lead Growth Strategy

Bethesda, MD | November 10, 2015

Bethesda, MD (October 28, 2015): The Hydrocephalus Association (HA), the nation’s largest patient advocacy organization dedicated to hydrocephalus and the largest private funder of hydrocephalus research, today announced the appointment of Diana Gray as Chief Executive Officer (CEO). Gray’s new role will begin November 13, 2015.

Building on the association’s growth over the last five years, Gray joins HA at a pivotal time with the establishment of a five-year strategy to raise awareness of hydrocephalus and increase research funding to seek a cure.  The strategy includes expanding educational and support services, influencing the health delivery system to improve diagnosis and treatments for patients, building key relationships with government officials and federal agencies, and pursuing high quality, high impact research in pursuit of a cure.

“The Hydrocephalus Association’s vision is to seek a cure for hydrocephalus and dramatically improve the lives of those living with the condition,” stated Aseem Chandra, chairman of the Board of Directors of the Hydrocephalus Association. “Diana’s appointment as CEO of the Hydrocephalus Association represents the Board’s commitment to that vision. We are delighted that Diana is bringing her 20 years of executive experience in fundraising, operations, new market development and volunteer management, to lead the Hydrocephalus Association.”

Gray recently served as Vice President of two nationally-recognized organizations – the Lupus Foundation of America and the Juvenile Diabetes Research Foundation International (JDRF). Her tenure at both organizations involved overseeing field management and development while growing operational capabilities and expanding into new markets. Her efforts enabled programs to reach more communities, empowered more volunteers to become leaders, and delivered increased services to growing numbers of constituents. During her 12 years at JDRF she helped structure programs that continue to serve as models across the country. Prior to joining JDRF, Gray exemplified her commitment to members of patient organizations by providing outstanding service as CEO of the Damien Center. The governor of Indiana presented Gray with Indiana’s highest civilian award, the Sagamore of the Wabash,  in recognition of her distinguished service. Gray received a Master of Arts degree in Counseling Psychology from Ball State University. She also holds a Bachelor’s degree from Anderson University, where she graduated summa cum laude.

About the Hydrocephalus Association

Hydrocephalus is a chronic life-threatening condition that causes an abnormal accumulation of cerebrospinal fluid within the brain. There is no cure. Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association (HA) is the nation’s largest organization dedicated solely to the condition. Its core services include four program areas: support, education, research, and advocacy. Since its inception, HA has significantly impacted the health care and scientific communities as well as the lives of the over one million Americans affected by hydrocephalus. This has been accomplished by actively collaborating with patients, caregivers, researchers and industry experts, raising awareness, and funding innovative, high-impact research to prevent, treat, and ultimately cure hydrocephalus. Since launching the Research Initiative in 2009, HA has funded over $3.6 million in hydrocephalus research. More than 60 percent of HA’s funding comes from individual donations, and approximately 35 percent comes from foundation and corporate grants. For more information, visit the Hydrocephalus Association website at www.hydroassoc.org or call (888) 598-3789.


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