Hope in Progress

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Boy with Hydrocephalus and Cerebral PalsyI hope you were able to attend last night’s the research webinar, Hope in Progress. For me it was yet another reminder of what we can accomplish when we stand together and invest in research. Thanks to your support we have made great strides in every stage of clinical research and in understanding the basic causes of hydrocephalus. From exploring alternative treatments such as a nasal mist to help the body absorb cerebral spinal fluid to establishing a treatment protocol to reduce post-operative shunt infections, there is hope.

I wanted to take a brief moment to share our 2014 Research Update: Hope in Progress that highlights several other studies, and to request your continued support.

As the father of a son with hydrocephalus, I can’t tell you how much I want to see the Hydrocephalus Association fulfill its mission within my son’s lifetime. It was January 10, 2005 when my son William arrived ten weeks prematurely. At that time, I learned that he developed bleeds in his lungs and then his brain. Immediate steps were taken to save his life while my wife and I sat around totally frightened, praying for his survival. It is a day I will never forget.

Today William is nine years old and is featured on this year’s cover of Hope in Progress. He has hydrocephalus and cerebral palsy as a result of those bleeds. He didn’t walk until he was four years old, but now we ride bikes for miles in the summer and he does karate. William had five brain surgeries early in his life, but hasn’t needed another one for the past few years.

Just the other day, William turned to me and asked, “Dad, will there ever be a cure for hydrocephalus?”

Those moments always seem to catch me off guard. I took a deep breath and said, “I am not sure William, but you should know that we are doing everything we can to improve treatments and find a cure.”

As I look through each page of the research update, I’m reassured by the great number of possibilities that exist to transform the treatment of hydrocephalus. There is no doubt that improved treatments, preventions and even cures are now being pursued. There is truly a reason for hope. But there’s still a lot that needs to happen.

The Hydrocephalus Association has a detailed, thoughtful and aggressive plan. We are focused and determined, and as long as we have the generous support of committed and passionate people like you, we will do everything within our power to continue to fight to end the pain and suffering associated with hydrocephalus.

If you have not made your annual research gift to HA, please consider donating today by clicking here: Hope in Progress Donation. It is only through the support of generous donors like yourself that we are able to make such great strides in our research efforts.

Wishing you and your family a happy, healthy holiday season.

Paul Gross
Co-founder, Hydrocephalus Clinical Research Network
Secretary, Hydrocephalus Association Board of Directors

 

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