Hope for St. Patrick’s Day!

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Girl with hydrocephalusA little luck? A lot of HOPE!

Hope is a 3 1/2 yr old identical twin who was born at 35 weeks and 2 days, healthy and with no complications. At 4 weeks old, she went into cardiac arrest. The family still does not know why. She had bleeding on her brain and suffered brain damage from the arrest. After a month in the pediatric intensive care unit (PICU), Hope finally went home. Under the watchful eye of her mother, Kelly, Hope was taken to the emergency room after being home for only 10 days. On that Saturday morning, Hope awoke with her soft spot bulging and what looked like she a goose egg on top of her head.  The family was told that her in the 10 days that she had been home, her head had grown 7 cm, and that she had hydrocephalus and would require brain surgery to relieve the pressure in her brain. She had an external drain placed, and then 2 days later a VP shunt placed. Three days later they took her home.

“As a parent anytime your child is sick it’s scary especially when there’s nothing you can do to fix what’s wrong. A hydrocephalus diagnosis is terrifying and brings a whole new level of fear but also a whole new level of pride as well. Watching Hope overcome the obstacles that hydrocephalus has put in her way amazes me and makes me proud beyond words. She is such a fighter and so happy all the time. Her laugh is contagious and her smile melts my heart! Hope may have hydrocephalus but hydrocephalus definitely doesn’t have her. ❤️” – Kelly, Hope’s mom.

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