Every year, organizations throughout the world observe World Prematurity Day on Nov. 17. Sponsored by the March of Dimes, World Prematurity Day serves as a way to highlight the health challenges premature babies face at birth and beyond, and to raise awareness for the need for more research. For us at the Hydrocephalus Association, World Prematurity Day is a way to draw attention to Posthemorrhagic hydrocephalus (PHH), one of the most insidious forms of hydrocephalus.
PHH develops after a brain bleed and most often occurs in premature infants. About 25 percent of all U.S. children living with hydrocephalus have PHH.
This year, let’s use our collective voice to highlight our #preemiehydroheros!
If your son or daughter has PHH and was born prematurely, post a picture of them on your social media channels using the hashtag #WorldPrematurityDay. Tag @HydroAssoc in your post so we can like and share it! The picture can be of them when they were infants or them today.
Here is a sample post you could use:
On #WorldPrematurityDay, I’m raising awareness about Posthemorrhagic #hydrocephalus (PHH), which most often occurs in premature infants. Here’s a pic of my #preemiehydrohero who is now [insert age]! I join @HydroAssoc in calling for more research dollars to find a cure and prevent PHH. Learn more at: https://www.hydroassoc.org/curephh/.
Here’s a picture of a #preemiehydrohero who is part of the HA family. Gabby is the daughter of Amanda Garzon, HA’s National Director of Program Services and Communications. Gabby was born premature at 28 weeks and is now a bright Honors student in high school!