Happy Valentine’s Day! Let’s Show we Care!

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Boozle Valentine

Happy Valentine’s Day

The Hydrocephalus Association is dedicated to helping families and individuals whose lives have been touched by hydrocephalus and the professionals who work diligently to create a brighter future through medical excellence and research.

There are many ways to show your love and care to the community. We invite you to:

 

 

  1. Register to attend the 12th National Conference on Hydrocephalus: Getting to the Heart of Hydrocephalus.
  2. Sign up to stay connected and informed.
  3. Share the Hydrocephalus Resource Library with someone today!
  4. Attend a support group meeting. Please visit our Support Network page for more details.
  5. Share the Teens Take Charge (TTC) link with a teen you know affected by hydrocephalus.
  6. How about taking steps with hundreds of us this year by joining a WALK in your area?
  7. Visit our how to get involved page for more ideas.
5 Comments for : Happy Valentine’s Day! Let’s Show we Care!
    • Denis
    • March 14, 2012
    Reply

    Hi everyone,we live in Venezuela  my niece has 15 years old her name Gilmaru Tovar Favier, and she was diagnosed with hydrocephalus, she has three surgeries, we feel right like your family fell, alone in this, we do not know why our Dr doesn’t talk about the programmable valve, after the first surgery she was good but time after she was with strong headache, we return to the hospital they made the second surgery after that, she doesn’t know about remember persons and some skills, we return to the hospital for third time, they cut the tube or line because that was with a curve and the liquid was stop, but we see she are not %100 good, this time the Dr talk about programmable valve, if some one can talk or help about procedures we appreciates, GOD IS WITH US…

    • Tammy Helton
    • March 11, 2012
    Reply

    My son was dignosed with Hydrocephalus when he was about two weeks old. I had no idea what was in store for me and my family. You are indeed right, there are not alot of people that know or understand what Hydrocephalus is or what the person or their family has to go through. Lots of prayers and strength. My son just turned 17 and he has had more than 7 surgeries. My thoughts and prayers are with each and every family that has to cope with this disability. You may not think so, but GOD is with you each and every day.

    • Tammy Helton
    • March 11, 2012
    Reply

    My son was dignosed with Hydrocephalus when he was about two weeks old. I had no idea what was in store for me and my family. You are indeed right, there are not alot of people that know or understand what Hydrocephalus is or what the person or their family has to go through. Lots of prayers and strength. My son just turned 17 and he has more than 7 surgeries. My thoughts and prayers are with each and every family that has to cope with this disability. You may not think so, but GOD is with you each and every day.

    • Kelly Miller
    • February 21, 2012
    Reply

    Our 19 year old son had a shunt put in last week, We will find out tommorrow the results from the spinal fluid for the cuase of his Hyrocephalus. We don’t have the support groups around here too. You are very right about people not understanding this illness. It is like you are alone. So many questions, concerns, and time. But you must stay strong! We take one day at a time. Hang in there.

    • Poppy Howland
    • February 15, 2012
    Reply

    I was diagnosed with Hydrocephalus at the age of 33yrs. I just turned 49 years old on Feb. 1st of this year. I have had 6 brain surgeries for shunt malfunctions and complications. I think it is wonderful that there are websites like this, for people like me. I find it to be a very lonely existence sometimes, as not too many people have even heard of this condition.
    I have lost many friends and my social life, along with the support of some family members, due to them not understanding all that is involved with living with Hydrocephalus. I live in Vancouver, Canada, and have yet to find a support group located anywhere in this vicinity. Fortunately, there seems to be a lack of people who have this condition, living in Vancouver. Unfortunately, it also means that I am indeed living with it all alone.
    Thanks to all of those responsible for making people more aware of this strange medical condition.
    Sincerely, Poppy

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