Rally for Medical Research

Federal funding for medical research has received bi-partisan support for the last three years, in part due to the efforts of advocates like the members of the Hydrocephalus Action Network. Together with 300 other health organizations, we unite on Capitol Hill for one day to share our stories and support sustained finding for NIH.

This annual event takes place this year on September 12-13, in the middle of our Hydrocephalus Awareness Month. JOIN US in 2018 as we take to Capitol Hill once again!

To sign up for the Rally for Medical Research 2018 CLICK HERE

Become a member of the Hydrocephalus Action Network! CLICK HERE

Learn more about the Rally for Medical Research. CLICK HERE

 

2018 Rally Schedule of Events

 

HA Training TBD

Wednesday, September 12, 2018

2:00pm – 4:00pm
CAPITOL HILL DAY TRAINING SESSION
The Watergate Hotel, Washington DC

5:00pm – 7:00pm
DC RECEPTION TO CELEBRATE MEDICAL RESEARCH
Dirksen Senate Office Building, Room G50

 

​Thursday, September 13, 2018

7:30am – 9:30am
CAPITOL HILL DAY KICK-OFF BREAKFAST
The Watergate Hotel, Washington DC ​

9:45am – 5pm
RALLY FOR MEDICAL RESEARCH CAPITOL HILL DAY
Meetings with House and Senate offices

 

Can’t attend training? If you cannot attend the trainings on Wednesday, do not worry! There will be two webinars leading up to the event for those that cannot make it in-person. We will host a webinar training specifically to cover issues related to hydrocephalus. The Rally folks will host a webinar training about the larger event and our message to carry forth on Capitol Hill.

 

Meet Ken!

In 2016, Ken participated in the Rally for Medical Research. Read what he had to say about his experience:

“Standing alone we may be overlooked.  Standing together, we can’t be ignored.

This was just one of the impressions that struck me during the 2017 Rally for Medical Research.  Joining with patient advocates from so many diverse communities, I was proud to represent more than 1 million people living with hydrocephalus, to raise our voices for increased support for NIH funding.

The Rally brings together patients, family members, and caregivers who shared their personal stories describing their challenges to diagnose and treat their conditions, including access to care and health care coverage.  Our delegation had several productive meetings with attentive Congressional staff who listened to our concerns and agreed to update their Member of Congress on our goals.

It was empowering to be a part of the event and to inform Congressional Staff on the impact of hydrocephalus, and the lack of significant federal research funding.  

Following the Rally, legislation was enacted to continue to increase NIH funding by $1 billion, to offset the impact of medial inflation and to expand research in key areas to help patients gain access to potentially life-saving treatments.  If our efforts at the Rally contributed to this victory, even in the smallest way, it motivates me to continue to represent everyone impacted by hydrocephalus.”

QUESTIONS

Please contact the Hydrocephalus Association by telephone at (888) 598-3789 or via email at rally@hydroassoc.org.

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