Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus

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Hydrocephalus Teens on Capitol HillJoin us on Wednesday, January 7, 2015 at 7:00 pm EST for the next webinar of our Support and Education Webinar Series: Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus. Hydrocephalus Association CEO, Dawn Mancuso, MAM, CAE, FASAE, will provide attendees with an introduction to advocacy – making a difference and increasing awareness by strategically sharing your experience with hydrocephalus and passion around improving treatment methods. Learn how to write, speak, and influence your local state and national representatives, helping them put hydrocephalus research funding, awareness and teen and young adult concerns at the top of their agendas!

Teens Take Charge (TTC) Advisory Council Member, Wyatt Barris, will be guest speaking. He will be discussing his personal experiences with hydrocephalus and efforts in raising awareness and advocating for himself and the hydrocephalus community.

Get motivated and equipped with knowledge and tools to discover your voice around policies affecting people with hydrocephalus and BE THE CHANGE!

Register buttonRegister online today and please share this educational opportunity with family, friends and medical professionals!


Wednesday, January 7, 2014
7:00 pm – 8:30 pm EST


Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus

Suggested Audience

This webinar is ideal for teens and young adults who are enthusiastic and interested in becoming hydrocephalus advocates.


Dawn Mancuso, MAM, CAE, FASAE

Chief Executive Officer (CEO), Hydrocephalus Association

As the CEO of the Hydrocephalus Association, Dawn is responsible for developing and implementing a strategic plan for HA, managing the overall operations and resources, and acting as the main point of communication between the board of directors and the HA staff. Dawn joined HA on December 1, 2011. After initially working in the communications field, Dawn has been a non-profit manager for over 30 years. Prior to working for HA, she served for 15 years as the Executive Director/CEO of the Association of Air Medical Services and its supporting foundation, the MedEvac Foundation International.

She is a frequent presenter at association management conferences, and has been published in magazines such as Association, Executive Update, and other non-profit management publications. She is a past board member of the American Society of Association Executives (ASAE), and is the author of one of the chapters of Professional Practices in Association Management, the closest thing to a textbook for those in the association management profession. She also worked with Jim Collins (author of Good to Great) as part of the research team and one of the research authors of the book, 7 Measures of Success: What Remarkable Associations Do that Others Don’t, published in 2006. Dawn earned the CAE (Certified Association Executive) designation from ASAE in 1991, and was named a Fellow of ASAE in March of 2001.

She has a Bachelors of Arts in International Relations from Georgetown University and a Master’s Degree in Association Management from George Washington University. In her spare time, she has volunteered as an usher for the Washington Shakespeare Theatre, and has served on the board of several community non-profits, including PAL, the Association Foundation Group (AFG), and MetroPets (an organization created to promote the adoption of homeless animals and the well-being of companion animals in the Washington, D.C. Metropolitan area through the smart use of Internet technology).

Wyatt Barris

Teens Take Charge (TTC) Advisory Council Member, Hydrocephalus Association

Wyatt Barris is a freshmen at Butte College, where he is currently studying biomedical engineering. He loves to write poems and stories, and is an avid runner who enjoys staying in shape. Wyatt was diagnosed with non-communicating hydrocephalus at eleven days old. He has undergone three shunt revisions, two of which happened this past year. Wyatt is a proud member of the TTC Advisory Council and a dedicated volunteer for the HA. His volunteer efforts include but are not limited to, walking in two parades to raise awareness for HA, participating in his local WALK and Community Network events, educating his peers about the condition during health class, attending the National Conference on Hydrocephalus and participating in the association’s advocacy efforts on Capitol Hill in Washington, DC. Wyatt is passionate about increasing awareness about the condition, and he hopes to apply his scientific aspirations to improve life for all living with it as well as help discover a cure.


This Webinar Series is made possible through the generosity of our industry partners The Batterman Foundation, Medtronic, Aesculap and Sophysa who we thank for supporting this important program!


The Batterman Foundation




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