Events

This can be a challenging time for both parents and kids alike. Join other parents to exchange experiences and support one another. This group is designed for parents of children ages 0- 18.

We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH!

This group is a safe space to connect, learn, and grow—where your experiences are valued, your challenges are understood, and your homeschool journey is supported every step of the way.

Join us on the 3rd Thursday of every month. This is a Virtual Meetup OPEN TO parents of young adult and adult children ages 19 and above living with hydrocephalus and any type of disability.

Join our midlife women living with hydrocephalus on the 3rd Saturday every month! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

This virtual meetup is designed to support and to learn more about the impacts of the L1CAM syndrome on families within our community. Join us on the 3rd Tuesday of every 3 months!

Join men living with hydrocephalus on the 4th Wednesday every month! This group is a safe place where men can share their experiences, support one another, and enjoy the company of those men that understand the journey of living with hydrocephalus.

Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

Join us for some lively conversation. We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.