Congressional Hydrocephalus Caucus Briefing

Children, Veterans, and Seniors

Life with a Brain Condition that has No Cure


Briefing for members of Congress and their staff  on Thursday, October 17, to hear from a few of the over 1,000,000 Americans living with hydrocephalus and, most importantly, what actions members of Congress can take to demonstrate support.

The panel will address the condition’s impacts on children, their families, veterans and seniors. We’ll also cover what the medical community is doing to improve treatments or perhaps even find a cure. Current Congressional discussions regarding research funding, medical coverage and patient protection all impact our community.


Michael Illions, Vice President, Pediatric Hydrocephalus Foundation, father to Cole living with hydrocephalus, will address the impact on children and their families.

James Spence, U.S. Army retired, will address traumatic brain injury in the veteran population.


Dr. Mark Luciano, neurosurgeon and Director of the Cerebral Fluid Center, John Hopkins Medicine, will present both the challenges and opportunities faced by researchers to find treatment alternatives and cures.

Diana Gray, President and CEO, Hydrocephalus Association, will share opportunities for Congressional engagement.

Congressman Christopher H. Smith and Congressman Lloyd Doggett, Co-Chairs, Congressional Pediatric and Adult Hydrocephalus Caucus, invited to deliver remarks.

DATE: Thursday, October 17, 2019
LOCATION: Rayburn 2044
TIME: 11:45 am – 1:00 pm

For questions please email

This briefing is in coordination with the

Congressional Pediatric and Adult Hydrocephalus Caucus
Congressman Christopher H. Smith and Congressman Lloyd Doggett, Co-Chairs

Hydrocephalus Association

Pediatric Hydrocephalus Foundation

HA and PHF Logos

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