Hydrocephalus Association CEO Dawn Mancuso discusses the many ways HA continues to serve the Education and Support needs of the entire hydrocephalus community, while focusing on initiatives specifically for the adult hydrocephalus population.
During Hydrocephalus Awareness Month we will open and close every week with a personal journey of life with hydrocephalus as part of our ongoing 'Voices from Our Community' series. Twelve year old Abby Wood of Albuquerque, NM opens our series with her story of living with hydrocephalus.
We are pleased to announce the launch of the Fudge Solomon Legacy Society, a planned giving program that will help to ensure the fiscal health of HA to meet the growing needs of our community. You may have noticed a new gold button on our homepage. The Legacy Society button will take you to our new landing page for The Society where you can learn more on how to become a member.
HA Medical Advisory Board Member Receives Grant from NASA Congratulations to HA Medical Advisory Board Member Michael A. Williams, MD. Dr. Williams is the recent recipient of a million dollar research grant from the National Space Biomedical Research Institute (NSBRI) and NASA's Human Research Program.
HA is leveraging our social media outlets to raise awareness about hydrocephalus this month. HA has posted Facebook cover banners that you can upload to your personal Facebook page to raise awareness in the social media world. Every week we will also be interspersing fact and quote posts and tweets to educate as many people as possible. Please Like or Share these images on Facebook.
We are in the middle of our WALK season, with WALKs happening around the country over the next two months. Thank you to the amazing volunteers who have given their time and hearts into making these events possible.
HA is pleased to be the beneficiaries of The Spirit of America RIDE sponsored by Celsius. We are thankful to Mark Paulissen and Mary Sodano who will be cycling 2,500 miles from Tampa to Denver to raise funds and awareness for HA. Mary and Mark have a niece living with hydrocephalus who is active in the community and a supporter of HA. We wish Mark and Mary well on their journey!
Researchers at Arizona State University in collaboration with Phoenix Children's Hospital have developed a novel microvalve with a passive and simple design/implantation that may result in lower failure rates.