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September 2012
In This Issue
The CEO's Corner
Support and Education
Development Update
Research Update
Advocacy and Awareness Update
Hydrocephalus in the News - Raising Awareness


The HA's Mission is to: 'Eliminate the challenges of hydrocephalus'  


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The CEO's Corner
HA CEO Dawn Mancuso


Hydrocephalus Association CEO Dawn Mancuso discusses the many ways HA continues to serve the Education and Support needs of the entire hydrocephalus community, while focusing on initiatives specifically for the adult hydrocephalus population.




Support and Education
September is Hydrocephalus Awareness Month! Here's What You Can Do... 

September is Hydrocephalus Awareness Month. Support Group Liaison Jennifer Bechard suggests the top 20 ways you can make an impact and help spread awareness of hydrocephalus.


During Hydrocephalus Awareness Month we will open and close every week with a personal journey of life with hydrocephalus as part of our ongoing 'Voices from Our Community' series. Twelve year old Abby Wood of Albuquerque, NM opens our series with her story of living with hydrocephalus.




Read more


The school year is starting up again. In this article we provide parents with suggestions and resources to help ease the transition back to school.


Read more

Development Update
New Planned Giving Program Launch: The Fudge Solomon Legacy Society

We are pleased to announce the launch of the Fudge Solomon Legacy Society, a planned giving program that will help to ensure the fiscal health of HA to meet the growing needs of our community. You may have noticed a new gold button on our homepage. The Legacy Society button will take you to our new landing page for The Society where you can learn more on how to become a member.



Research Update
HA Medical Advisory Board Member Receives Grant from NASA
Congratulations to HA Medical Advisory Board Member Michael A. Williams, MD. Dr. Williams is the recent recipient of a million dollar research grant from the National Space Biomedical Research Institute (NSBRI) and NASA's Human Research Program.  


Advocacy and Awareness Update
Facebook Brings Visibility to Hydrocephalus Awareness Month


HA is leveraging our social media outlets to raise awareness about hydrocephalus this month. HA has posted Facebook cover banners that you can upload to your personal Facebook page to raise awareness in the social media world. Every week we will also be interspersing fact and quote posts and tweets to educate as many people as possible. Please Like or Share these images on Facebook.


Visit HA on Facebook and Twitter 

Hydrocephalus Association WALK Season in Full Swing! 


We are in the middle of our WALK season, with WALKs happening around the country over the next two months. Thank you to the amazing volunteers who have given their time and hearts into making these events possible.


See a list of upcoming WALKS here

View our WALK post on Facebook

The Spirit of America RIDE 


HA is pleased to be the beneficiaries of The Spirit of America RIDE sponsored by Celsius. We are thankful to Mark Paulissen and Mary Sodano who will be cycling 2,500 miles from Tampa to Denver to raise funds and awareness for HA. Mary and Mark have a niece living with hydrocephalus who is active in the community and a supporter of HA. We wish Mark and Mary well on their journey!    


Hydrocephalus in the News - Raising Awareness
Delaware's Hydrocephalus WALK Highlighted in the Smyrna-Clayton Sun-Times


The Smyrna-Clayton Sun-Times highlights the upcoming Delaware Hydrocephalus WALK which will take place on September 22, 2012 at Smyrna High School.



A Novel Micropatterned Microvalve Developed for the Treatment of Hydrocephalus 


Researchers at Arizona State University in collaboration with Phoenix Children's Hospital have developed a novel microvalve with a passive and simple design/implantation that may result in lower failure rates.    


CT News Channel WTNH Spotlights the Upcoming Middlebury WALK 


Connecticut News Channel WTNH spotlights the upcoming Middlebury WALK that will take place on October 6, 2012 at Meadowview Park.


Famous Gospel Singer and Wife Create Their Family Through Adoption and Devotion 


The Adrian Daily Telegram shares the story of the national recognition Jerry Garcia and his wife Sarah have received by adopting children with medical conditions and special needs.    


Wall Street Journal Reports on 70 Year Old Indiana Man's Misdiagnosis of NPH 


The Wall Street Journal shares the story of 70-year-old Jasper "J.D." Cain, misdiagnosed with Parkinson's disease but  ultimately receives diagnosis of NPH.    


Chicago's Upcoming WALK Appears in the Chicago Sun Times Online 


Local reporter,  Matthew Schwerha, highlights the upcoming Chicago WALK occurring September 15, 2012.   


Leslie Katz Shares Her Sister's Story of Living with Hydrocephalus 


Leslie Katz, , CRAVE Technology Writer, approaches an article on her sister's journey with hydrocephalus from a technology point-of-view on   


Motorcycle Club Raises Funds for Young Boy with Hydrocephalus 


The Steel Talon motorcycle club raised funds for a NY boy and his family.  


Hershey Park WALK Featured on 


The August 4th Hershey, PA WALK is featured on


Military Researchers Gain Understanding of TBI 


Military researchers are getting a better understanding of the long-term neurological effects of a battlefield blast or concussion.


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