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July 2012

In This Issue
The CEO's Corner
Support and Education
Advocacy Update
Research Update
Hydrocephalus in the News - Raising Awareness

 

The HA's Mission is to: 'Eliminate the challenges of hydrocephalus'  

 

 

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ConferenceAttendees

The CEO's Corner
HA CEO Dawn MancusoAdvocacy Day and the 12th National Conference 

 

HA CEO Dawn Mancuso talks about the important work accomplished at our 2nd Advocacy Day in Washington, D.C., and also summarizes one of our best National Conferences ever!

 

 

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Support and Education
"Reason for Hope" - HA's New Research Campaign 

 

ConferenceAttendees
The HA announced a new $3 million dollar fundraising campaign intended to fund new and exciting research in three targeted and impactful areas.

 

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"Reason for Hope" Campaign Receives Big Boost 

  

During the 12th National Conference on Hydrocephalus, HA received a $500,000 commitment to the new "Reason for Hope" campaign to fund research.

 

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Advocacy Update
ConferenceAttendeesHydrocephalus Association Brings its Message to Capitol Hill!

Some attendees of the 12th National Conference on Hydrocephalus gathered on Capitol Hill to ask for increased research funding during our second advocacy day in Washington, D. C..  

 

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Research Update
NetFlix Founder Headlines Hydrocephalus Research Conference

ConferenceAttendeesNetFlix
Founder and former member of the HA Board of Directors Marc Randolph provided the keynote speech at "Opportunities in Hydrocephalus Research: Pathways to Better Outcomes," our research conference in Seattle, Washington, from July 9 - 11, 2012.

 

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ConferenceAttendeesNIH Supports Upcoming Hydrocephalus Research Conference 

 

The National Institute of Neurological Disorders and Stroke (NINDS), a department of the National Institutes of Health (NIH) is officially supporting our research conference: "Opportunities in Hydrocephalus Research: Pathways to Better Outcomes".

 

Hydrocephalus in the News - Raising Awareness
TTC Council Member's Awareness Effort Featured in Lincolnshire Review

 

Teens Take Charge Advisory Council Member Megan Rivkin, 14, was featured in her local newspaper, "The Lincolnshire Review" to honor her efforts to raise funds for TTC.

 

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Normal Pressure Hydrocephalus Featured in "everydayhealth.com"

 

Alicia Nildo, 82, of Orlando, FL had her story of NPH, misdiagnosis and eventual treatment, covered in an online story in everydayhealth.com.

 

 

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Indianapolis Man's NPH Story in the News 

  

J.D. Cain of Indianapolis was misdiagnosed as having Parkinson's for years before receiving the correct diagnosis of NPH. RTV6, his local ABC affiliate, covered his story.  

 

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