April 2012

In This Issue

Donor and Fundraising Updates

The CEO's Corner

Support and Education

Hydrocephalus Teens Take Charge

Hydrocephalus in the News - Raising Awareness

12th National Conference on Hydrocephalus!

June 26 - July 1

The HA's Mission is to: 'Eliminate the challenges of hydrocephalus'

Upcoming HA Events

04/07 - Owasso, OK Hydrocephalus Support Group Meeting

04/18 - Greater Hartford, CT Support Group Meeting

04/21 - Los Angeles, CA Hydrocephalus Support Group

04/28 - Chico, CA Hydrocephalus Support Group Meeting

05/12 - Chicago, IL Hydrocephalus Support Group Meeting

Donor and Fundraising Updates

ConferenceAttendees

There are a million reasons to walk....HA WALKs Update!

In February and March, HA held WALK Chair Training seminars, where new and experienced WALK chairs traded ideas, stories and tips.

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The CEO's Corner

re*search / rēˌsərCH/

Hydrocephalus Association CEO Dawn Mancuso talks of the changes about to take place at HA and its future.

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Support and Education

NINDS Director Dr. Landis to Headline HA's Conference in June

Dr. Story Landis, the Director of the National Institute for Neurological Disorders and Stroke (NINDS) at the NIH, will be giving a keynote speech at the 12th National Conference on Hydrocephalus.

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12th National Conference on Hydrocephalus: Travel Tips

Headed to the 12th National Conference on Hydrocephalus in Bethesda, MD? Here are some travel tips to help plan your trip to join hundreds of other participants at the conference.

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Hydrocephalus Teens Take Charge

Meet Teens Take Charge (TTC) Council Member: Madison

Madison Pardi, a 14 year-old member of our TTC Advisory Council, shares her story about hydrocephalus and how she deals with the condition as a difference, not a disability.

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Hydrocephalus in the News - Raising Awareness

NPH Featured in the Huffington Post

Huffington Post Columnist Cynthia R. Green, PhD, shares her mother-in-law's struggle to receive an accurate diagnosis of Normal Pressure Hydrocephalus (NPH).

Holly and Issac Frasure discuss their daughter's hydrocephalus diagnosis and how it affects their family.

Two Children with Hydrocephalus Meet their Heroes

Eddie and Hannah meet their heroes through the 'Kids Wish Network,' an international organization dedicated to giving hope, happy memories, and an improved quality of life for children having experienced life-altering situations.