Hydrocephalus Association eNewsletter | MAY 2019
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Connan O'Brien Headlines Comedy Fundraiser for HA!
The Hydrocephalus Association’s mission to find a cure got a major boost on April 11 when comedian Conan O’Brien headlined our 2nd Annual “In Stitches: A Night of Laughs” comedy fundraiser. Four hundred people attended the sold out show, held at the Avalon Hollywood in Los Angeles, raising $300,000 for hydrocephalus research and other programs.
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Hydrocephalus Patient Registry Continues to Grow
Over 400 individuals have joined HAPPIER, the nation's first and only Hydrocephalus Patient Registry. HAPPIER was created for patients and caregivers to provide input to scientists about how hydrocephalus impacts their daily life. The information collected will help paint a clearer picture of the condition and inform critical research. Join HAPPIER today!
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Hydrocephalus Roadmap to a Cure
Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020. 
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UPCOMING EVENTS
5/19
Charlotte, NC StrikeOUT Hydrocephalus Play Day
6/1
Columbia, S.C. Hydrocephalus Kick-Off Group Outing
6/8
Portland WALK to End Hydrocephalus
7/7
Sleepaway Camp for Kids with Hydrocephalus
8/10
Seattle WALK to End Hydrocephalus
8/17
Chicago WALK to End Hydrocephalus
8/31
NW Arkansas WALK to End Hydrocephalus


 


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Surviving College with the Ups and Downs of Hydrocephalus
College is an exciting time but can be challenging when you’re living with hydrocephalus. In a new post to HA's Blog, HA volunteer Caitlin Maynard offers tips to survive college while managing the ups and downs of hydrocephalus.
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Find a WALK to End Hydrocephalus Near You! 
Last year, 14,000 people, representing 1,200 teams, participated in a WALK to End Hydrocephalus, raising nearly $2 million for critical hydrocephalus programs. Which WALK will you join this year? Register for a WALK today and help us get closer to a cure for hydrocephalus!

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NPH Video Series ENewsletter
New Video Series Answers Your Questions on NPH
Our new Ask the Expert video series on Normal Pressure Hydrocephalus (NPH) provides expert advice on everything from how to correctly diagnose NPH and what the symptoms are to what happens when NPH goes untreated. Check out our first episode, "Dementia or NPH. Proper Diagnosis and Referral." This series is sponsored by our industry partner Codman, a part of Integra Lifesciences.
 
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Your Summer Camp Adventure Awaits!
Registration CLOSES June 1st! There's still time to register your kids and teens for Camp Head Strong, the only sleep away camp for children and adolescents living with hydrocephalus! Camp Head Strong was developed by Brainy Camps (a subsidiary of Children's National Health System) in partnership with the Hydrocephalus Association to provide youth with hydrocephalus five days and four nights of summer fun, education, and social connections.  
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