Hydrocephalus Association eNewsletter | MARCH 2019

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Conan O'Brien to Headline In Stitches Fundraiser on April 11! We're thrilled to announce that Conan O'Brien will headline In Stitches, A Night of Laughs April 11 in Hollywood, CA! Join us for a night of comedy and cocktails as we raise funds to support HA's mission. Read More   Researchers Publish Paper on Hydrocephalus Symptoms  In 2017, we asked our Facebook followers what symptoms they experience related to hydrocephalus. Researchers analyzed their responses and published a paper summarizing the results.  Read More

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.  JOIN IN

UPCOMING EVENTS

3/12 DFW - It's Time to ZOOM Again! 3/22 10th Annual Charity Card Party 3/23 Hydrocephalus Education Day - Washington, D.C. 3/25 FREE WEBINAR:  New Results on the Genetic Causes of Congenital Hydrocephalus

3/30 Hydrocephalus Education Day - Baltimore, MD 4/6 Colorado & Wyoming Community Network Meeting 4/6 Long Island, NY Community Network Meeting 4/9 DFW - ZOOM Time!

4/11 In Stitches Featuring Conan O'Brien 4/27 Baltimore Mommy Meet Up 5/5 Colorado & Wyoming Community Network StrikeOUT Hydrocephalus! 5/19 Charlotte, NC StrikeOUT Hydrocephalus Play Day

6/8 Portland, OR WALK to End Hydrocephalus 7/7 Sleep Away Camp for Kids with Hydrocephalus! 8/10 Seattle, WA WALK to End Hydrocephalus 8/31 Northwest Arkansas WALK to End Hydrocephalus

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Hiking for a Cure! An Adventure Seeker Takes on the Appalachian Trail Seeking a fresh start, Willow Bolton decided to hike the Appalachian Trail -- and to raise awareness and funds for hydrocephalus along the way. Read about what inspired her journey. READ MORE Apply for an HA Scholarship by April 15!  Do you know a young person living with hydrocephalus applying for college? Let them know about the Hydrocephalus Association Scholarship Program! We offer academic scholarships for bright young people living with hydrocephalus.The deadline for submissions is April 15, 2019, and recipients will be notified in August 2019. READ MORE Finding A Hobby or Extracurricular Activity That's Right for You People with disabilities can benefit greatly from taking up a new hobby or an extracurricular activity -- from gaining confidence to making new social connections. Here are some tips to finding the activity that's right for you.   READ MORE Hydrocephalus Research Needs YOU! We've learned a lot over the years about hydrocephalus but there is still so much we don't know! But in order to identify new breakthroughs in treatments or a cure for hydrocephalus, researchers need a better understanding of the hydrocephalus community. That's why we developed the Hydrocephalus Patient Registry (HAPPIER) -- so you can share your experiences living with hydrocephalus and help inform critical research. READ MORE Start a Facebook Fundraiser for HA! Want a quick and easy way to raise much-needed funds for hydrocephalus research, education and support programs? Launch a fundraiser for the Hydrocephalus Association on Facebook! Facebook fundraisers are a great way to support HA’s mission. Create one for your birthday or any occasion! Let your friends and family gift you something that can make a huge difference!    READ MORE Register NOW for the Only Sleep Away Camp for Kids with Hydrocephalus What if there was a fun and safe summer camp experience specifically designed for children and teens living with hydrocephalus? GOOD NEWS, THERE IS! Camp Head Strong was developed by Brainy Camps (a subsidiary of Children's National Health System) in partnership with the Hydrocephalus Association to provide youth with hydrocephalus five days and four nights of summer fun, education, and social connections.  READ MORE JOIN US Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. Copyright 2019 Hydrocephalus Association, All rights reserved. Unsubscribe