Hydrocephalus Association eNewsletter | JUNE 2019

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No One WALKs Alone! Our 2019 WALK to End Hydrocephalus season is here! Whether you're walking in L.A., Chicago or New York -- you'll meet others impacted by this condition and help us raise much-needed funds for our research, education, support and advocacy programs. There are 46 walks taking place around the country. Visit our website to find a WALK near you! Find Your WALK   Help Shape the Future of Hydrocephalus Research! Be a part of research! Join HAPPIER, our hydrocephalus patient-powered registry. HAPPIER was created for patients and caregivers to provide input to scientists about how hydrocephalus impacts their daily life. By adding your experience with hydrocephalus, you are helping scientists understand the complexities of living with this condition and where to focus their research. Read More

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.  JOIN IN

UPCOMING EVENTS

6/22 LA Community Network Event 6/28 Ventura Community Network - Medtronic Shunt Facility Tour 6/30 Chicago Community Network - Fundraiser at Boomers Game 7/7 Sleepaway Camp for Kids with Hydrocephalus

8/10 Seattle WALK to End Hydrocephalus 8/17 Chicago WALK to End Hydrocephalus 8/31 NW Arkansas WALK to End Hydrocephalus 9/1 Denver WALK to End Hydrocephalus

 

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Two Friends Run 200 Miles to Find a Cure for Hydrocephalus How far would you run to raise awareness and funds for hydrocephalus research? How about 200 miles? Ultrarunners Brett Bauer and Matt Campbell will run the Reebok Ragnar Northwest Passage, a 200-mile journey from the Canadian border to Langley, WA, in July, with proceeds going to Brett's nephew's HA WALK team. READ MORE New Video Series on NPH Available on YouTube How do doctors diagnose Normal Pressure Hydrocephalus (NPH)? How soon do patients see an improvement in their symptoms after having shunt surgery? Can NPH be treated with an endoscopic third ventriculostomy (ETV)? These are just a few of the questions answered by experts at Johns Hopkins Medicine on our new Ask the Expert Series on NPH, available now on YouTube. This series is sponsored by our industry partner Codman, a part of Integra Lifesciences. WATCH NOW Finding Life's Purpose Through Hydrocephalus James “JT” Thompson developed hydrocephalus as a teen. Little did he know that his experience would help him find his purpose in life.   READ MORE Deadline Extended for Camp Head Strong There's still time to register your kids and teens for Camp Head Strong, the only sleep away camp for children and adolescents living with hydrocephalus! Camp Head Strong was developed by Brainy Camps (a subsidiary of Children's National Health System) in partnership with HA to provide youth with hydrocephalus five days and four nights of summer fun, education, and social connections.   READ MORE   JOIN US Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. Copyright 2019 Hydrocephalus Association, All rights reserved. Unsubscribe