Hydrocephalus Association eNewsletter | JULY 2019

GET INVOLVED

FEATURED ARTICLES

Check Out Our 2018 Annual Report

2018 was an amazing year for the Hydrocephalus Association thanks to YOU -- the change makers of 2018! We grew our supporters, reached new audiences and vastly expanded the hydrocephalus research landscape. See our digital 2018 Annual Report to learn why 2018 was a great year!

Be a Part of Research - JOIN HAPPIER!

Do you want to help researchers better understand hydrocephalus? Join HAPPIER, our Hydrocephalus Patient-Powered Registry for patients living with the condition AND caregivers! The information collected in the Registry informs critical research that could lead to new intervention strategies for preventing the condition, improvements in diagnosis, or new treatments. Signing up takes three easy steps!

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.

JOIN IN

UPCOMING EVENTS

7/14

DC WALK Kickoff at Anheuser-Busch InBev DC Headquarters

7/26

Portland & Vancouver Community Network - MAMA NEEDS COFFEE!

7/27

Hydrocephalus Association Colorado & Wyoming Community Network Event

8/10

Seattle WALK to End Hydrocephalus

8/17

Charlotte, NC 7th Annual Summer Picnic and HA WALK Kick-Off

8/17

Chicago WALK to End Hydrocephalus

8/31

NW Arkansas WALK to End Hydrocephalus

9/1

Denver WALK to End Hydrocephalus

9/5

Columbia, SC Hydrocephalus Support Group Meeting

9/7

Los Angeles WALK to End Hydrocephalus

9/7

Western NY WALK to End Hydrocephalus

9/14

NEW! Sacramento WALK to End Hydrocephalus

View all HA WALKs & Events >>

OTHER STORIES

view more stories

Share Your Story of Hope!

Have you, or your loved one with hydrocephalus, overcome major obstacles to get to where you are today? Are you living your best life? Then share your story with the Hydrocephalus Association! Help us prove that people living with hydrocephalus are thriving despite the challenges of the condition, and give hope to others who are just starting their journey with hydrocephalus. Submit your story so we can feature it on our website!

SUBMIT STORY

How Well Do Babies Do With ETV-CPC Treatment?

The Hydrocephalus Clinical Research Network (HCRN) conducted a study to determine which babies under two years old with hydrocephalus have the best chance of success with an ETV-CPC procedure. In her blog, Dr. Jenna Koschnitzky, National Director of Research Programs, explains why the findings of this study are important when determining if a baby under two years old should receive a shunt or undergo the ETV-CPC procedure.

READ MORE

Find Your Hydro Family at a WALK Near You!

The WALK to End Hydrocephalus is an opportunity to meet other individuals and families impacted by hydrocephalus. It's a chance to connect and realize that you're not alone on this journey! As many WALK veterans can attest, the people you meet at an HA WALK often times become your extended hydrocephalus family and your life-long support network. Register now for a WALK near you and start building your hydro family!

FIND YOUR WALK

New Clinical Trial Aims to Determine Effectiveness of Shunting for iNPH Patients

Patients diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH) are typically treated by having a shunt placed surgically. A new clinical trial will determine whether or not shunts are an effective form of treatment for iNPH patients.

JOIN US

Our mission is to FIND a cure for hydrocephalus and improve the lives of those IMPACTED by the condition.

Unsubscribe