Hydrocephalus Association eNewsletter | January 2019

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2019 Scholarship Cycle is OPEN! We are now accepting applications for our 2019 Scholarship Cycle, please apply by April 15, 2019. Read more                                       This 2019 Be a Part of Our #NOMOREBS Campaign! Send your picture, your name, age, and # of brain surgeries to ines@hydroassoc.org and you could be featured in our next #NOMOREBS social media post!   Send Email

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.  JOIN IN

UPCOMING EVENTS

1/8 Dallas/Fort Worth Let's Get Virtual! 1/12 Houston Community Network Meeting 1/17 Washington, DC Area Adult Hydrocephalus Meet Up! 1/20 New York City Community Network

1/27 Boston - Let's Kick-off 2019 with a Meet N' Greet! 3/7 Columbia, SC Support Group Meeting 4/6 Colorado Community Network Meeting

OTHER STORIES view more stories

Download "Keep on Walking" Today to Support HA and Help Spread Awareness About Hydrocephalus! Norteno/country music singer/songwriter Chris Arellano wrote a song about Amy Thomas, who is living with hydrocephalus. The song, "Keep on Walking," was inspired by Amy's hopeful spirit. Despite the ups and downs and 17 brain surgeries, Amy chooses to keep on walking. Half of the proceeds of the song will go towards the Hydrocephalus Association. Available in the iTunes Store and on CD Baby. WATCH VIDEO Join the Nation's First Hydrocephalus Patient Registry!  Help scientists prevent and cure hydrocephalus by signing up for the first-ever Hydrocephalus Patient Registry, also known as HAPPIER! The data you provide in the Registry will inform the work of our researchers, helping them get closer to new breakthroughs and innovations. READ MORE Drink Cider for a Cause! The Hydrocephalus Association is proud to be partnered with Locust Cider! If you live near a tap room, you can join their club, The Swarm and receive exclusive offers and access to limited edition ciders not available to the public, and much more!    READ MORE Getting Your Life Back after NPH After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey. READ MORE Setting Up a Facebook Fundraiser for the Hydrocephalus Association Facebook has made fundraising for the Hydrocephalus Association as almost as easy as 1-2-3.  Here are the steps to set up your Facebook Fundraiser and some hints and tips to maximize your fundraising efforts! READ MORE Give your Teen a Memorable Experience at Camp Head Strong Do you have a teen or preteen living with hydrocephalus? Consider signing them up for Camp Head Strong, where they can meet other young people living with hydrocephalus and learn new skills in a fun and supportive environment. READ MORE JOIN US Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. Copyright 2019 Hydrocephalus Association, All rights reserved. Unsubscribe