PATHWAYS, Hydrocephalus Association eNewsletter | February 2017
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FEATURED ARTICLES CLICK HERE FOR ADDITIONAL ARTICLES
Join us at NIH and Capitol Hill for Rare Disease Day! Tacking the Challenges of Transitioning to Adult Medical Care
2017 Hydrocephalus Association Scholarship Cycle is OPEN! Whole Foods features Cider with a Purpose
FREE Webinar on Genetic Causes of Hydrocephalus THANK YOU! Together We Made it a Great Year! (Watch Video)
UPCOMING EVENTS

 02/09

DC Metro Adult Meet Up

DC Metro Mommy Meet Up

02/11
Boston Community Network’s Winter Meet N’ Greet

Houston Community Network Afternoon Sharing & Support

 02/25

Hydrocephalus Education Day – Washington D.C.

 02/27

Chattanooga Community Network Get Involved Event

 02/28

Minneapolis Community Network Meet N' Greet

03/11
Barrow Normal Pressure Hydrocephalus Education Day

03/14
FREE WEBINAR – Genetic Causes of Congenital Hydrocephalus

 

We have QUESTIONS.
YOU have answers!

 Young Adult in your 20s?

Have you recently transitioned from pediatric to adult-centered medical care? We would love to hear your experiences, accomplishments and challenges. Parents with stories also welcome to share! Please email jennifer@hydroassoc.org.

 

 What policies are important
to you?

As a new direction in healthcare, education, and labor are being developed under the new Administration, we want to know what issues are important to you and our larger hydrocephalus community. What needs to stay? What needs to change? How are you now or how will you be potentially positively impacted or challenged? Email us at advocacy@hydroassoc.org to share your experience and opinion. It is important to us!

 
OTHER STORIES
Aging out of Pediatric Care: A Cautionary Tale
Two Education Days Announced - Phoenix (NPH) & Washington, D.C.
Sleep Away Camp for Kids with Hydrocephalus
Genetic Mutations and Congenital Hydrocephalus
Study into Congenital Hydrocephalus Needs Participants
Jamie Advocates for Hydrocephalus Awareness
Video: Anxiety, Depression and Kids with Hydrocephalus
Patients Needed for Imaging Study
Update on Obamacare
Call Congress on Changes to Obamacare
Video: Does Hydrocephalus Impact Driving Abilities?
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Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition.

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Hydrocephalus Association, 4340 East West Highway, Suite 905, Bethesda, MD 20814-4447
toll-free (888) 598-3789 http://www.hydroassoc.org