Hydrocephalus Association eNewsletter | DECEMBER 2019
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Thank You to Everyone Who Supported HA on #GivingTuesday!
We came so close to meeting our $100,000 match! But it's not too late! Our generous donor has agreed to extend the mach through the end of the year. If you have not made your end of year gift yet, consider donating today!
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Updated HydroAssist App Coming
Soon!

We are launching the next generation HydroAssist App that allows you to share your information with another authorized user (aka, loved one). Watch for our launch announcement on our social networks this week!  

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Hydrocephalus Roadmap to a Cure
Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020. 
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UPCOMING EVENTS
12/14
2019 Houston HACN Holiday Party & Cookie Decorating
12/19
Dubfire Presents: A Children's Story - Toy Drive Fundraiser




 
 
 

 

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Congressman Cox
Congressman TJ Cox Joins Congressional Hydrocephalus Caucus
HA's Amanda Garzon met with Congressman TJ Cox to discuss the legislative priorities of the hydrocephalus community and he accounced that he is joining the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus.
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Be a Part of Research!
Whether you are living with hydrocephalus or provide care for someone with hydrocephalus, we welcome you to join our quickly growing community and share your experiences. Your contributions are meaningful. Together, we will move hydrocephalus research forward as well as improve support services and resources for our community.
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The Hydrocephalus Scoop on the Hill
Believe it or not, the impeachment debate isn’t the only thing happening in Washington, DC! Here’s a quick rundown of the legislative issues we are monitoring in Congress.
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HA WALKs Help Raise Over $2 Million for Key Programs
Over 1,500 individuals and families participated in a WALK to End Hydrocephalus this year, raising over $2 million to support HA’s mission. 
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Ask The Expert Video Series for Adults Living with Hydrocephalus
Check out the first episode of our Ask the Expert Series for Adults Living with Hydrocephalus. The video, sponsored by our industry partner Medtronic, explores the difference between having slit ventricles and slit ventricle syndrome, and how it impacts hydrocephalus patients. 
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Our mission is to FIND a cure for hydrocephalus and improve the lives of those impacted by the condition.
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