Hydrocephalus Association eNewsletter | DECEMBER 2018

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Upcoming FREE Webinar: Planning for the Road Ahead A diagnosis of chronic and/or neurological condition as an older adult means planning not only for ongoing medical care, but also for potential changes to long term legal and financial plans. In this webinar, legal experts will explore how to make legal plans that fit your needs and that incorporate members of your care team. Read more                                       New Paper Addressing Transition to Adult Care Makes it to Major Medical Journal A new paper summarizing the findings from the Hydrocephalus Association’s first-ever Transition Summit was published in the prestigious Journal of Neurosurgery (JNS).   Read more

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.  JOIN IN

UPCOMING EVENTS

12/11 Dallas/Fort Worth: Let's get virtual! 12/13 FREE WEBINAR: Planning for the Road Ahead 12/15 Maryland and DC Area NPH Meet Up

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The Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH). This study measured patient outcomes and documented each patient’s experience through diagnosis, treatment, and recovery in order to guide clinical counseling. READ MORE Join the Nation's First Hydrocephalus Patient Registry!  Help scientists prevent and cure hydrocephalus by signing up for the first-ever Hydrocephalus Patient Registry, also known as HAPPIER! The data you provide in the Registry will inform the work of our researchers, helping them get closer to new breakthroughs and innovations. READ MORE Donate to HA through the 2018 Combined Federal Campaign (CFC) Do you work for the federal government or serve in the military? A lasting gift this holiday season can be made through your workplace! Designate the Hydrocephalus Association with code #10066 through the CFC Campaign, the federal government's workplace giving program, and help us change the future of hydrocephalus.   READ MORE How a Changed Congress Could Impact Hydrocephalus On Tuesday, November 6th, voters went to the polls and made some significant changes to the U.S. Congress. Due to the bi-partisan nature of policy issues impacting the hydrocephalus community, this outcome represents both opportunities and challenges moving forward. READ MORE Thank You For Helping to Plan the Future of HA! Thank you to the over 800 people who completed our Strategic Plan Survey. Your input is crucial as we plan the strategic direction of the organization. Here is a summary of the results. READ MORE Give your Teen a Memorable Experience at Camp Head Strong Do you have a teen or preteen living with hydrocephalus? Consider signing them up for Camp Head Strong, where they can meet other young people living with hydrocephalus and learn new skills in a fun and supportive environment. READ MORE JOIN US Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. Copyright 2017 Hydrocephalus Association, All rights reserved. Unsubscribe