Hydrocephalus Association eNewsletter | April 2019

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FEATURED ARTICLES

Announcing our New NPH Ask the Expert Video Series! We're excited to announce our new Ask the Expert video series on Normal Pressure Hydrocephalus (NPH), available now on HA's YouTube channel! In this series, medical experts from the Johns Hopkins Cerebral Fluid Center answer questions about NPH diagnosis, treatment, symptoms and more! Read More   Cathy Cartwright Calls on Neuroscience Nurses to Get Involved in Transition Planning At the American Association of Neuroscience Nurses (AANN)’s Annual Meeting, neuroscience nurse Cathy Cartwright left her peers with an important message: neuroscience nurses can help hydrocephalus patients and families transition successfully from pediatric to adult care. Read More

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expand patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.  JOIN IN

UPCOMING EVENTS

4/13 Houston Community Network Meeting 4/27 Baltimore Mommy Meet Up 5/5 Colorado & Wyoming Community Network StrikeOUT Hydrocephalus! 5/19 Charlotte, NC StrikeOUT Hydrocephalus Play Day

6/1 Columbia, S.C. Hydrocephalus Kick-Off Group Outing 6/8 Portland WALK to End Hydrocephalus 7/7 Sleepaway Camp for Kids with Hydrocephalus 8/10 Seattle WALK to End Hydrocephalus

 

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2019 WALK to End Hydrocephalus Season Kicks Off in June! The 2019 WALK to End Hydrocephalus season is around the corner. Do you know where you're walking this year? Come meet other families impacted by hydrocephalus and help us raise funds for our research, support, and education programs. Visit our website to find a WALK near you! READ MORE Scholarship Deadline is April 15th! There is less than a week left to apply for the Hydrocephalus Association Scholarship Program! We offer college scholarships for bright young people living with hydrocephalus.The deadline for submissions is April 15, 2019, and recipients will be notified in August 2019. READ MORE Share Your Experience in the First-Ever Hydrocephalus Patient Registry! Have you had fewer than five brain surgeries over the course of your life living with hydrocephalus? Then share your experience in the first-ever Hydrocephalus Patient Registry (HAPPIER)! Whether you've had 1 or 100 brain surgeries, your information is critical and will help inform hydrocephalus research. Join now!   READ MORE Participate in a Study on the Genetic Causes of Hydrocephalus Were you BORN with hydrocephalus? You can make history by participating in a study to help find genetic causes of hydrocephalus. And you can do it from the comfort of your home!  READ MORE Want a Free #NOMOREBS T-shirt? Make a recurring monthly gift of $25 or more to support our hydrocephalus research, education and support programs--and receive a #NOMOREBS t-shirt as a token of our appreciation!  READ MORE Register Your Kids and Teens for Camp Head Strong! Camp Head Strong offers children and teens with hydrocephalus (ages 10-17) five days and four nights of summer fun, education, and social connections. Children learn from peers and adult volunteers who live effectively with the same health conditions and are offered hope for the future. They take part in a wide range of fun and challenging experiences and form lifelong friendships. READ MORE JOIN US Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. Copyright 2019 Hydrocephalus Association, All rights reserved. Unsubscribe