Hydrocephalus Association eNewsletter | OCTOBER 2017
 
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FEATURED ARTICLES
 
 
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The Vision to End Hydrocephalus after a Brain Bleed
 
The Hydrocephalus Association’s annual Vision Dinner highlights the advances in research that aims to prevent or minimize the development of hydrocephalus after a brain bleed.
 
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Conference 2018 Newsletter
 
 
 
Book Your Hotel for Conference!
Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Irvine Marriott in Orange County, California. Book your hotel!
 
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Hydrocephalus Roadmap to a Cure
 
Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expant patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020. 
 
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UPCOMING EVENTS
 

 
10/21
 
Colorado Community Network Meeting with Guest Speaker
 
 
10/21
 
Greater Chattanooga WALK to End Hydrocephalus
 
 
10/21
 
South Florida WALK to End Hydrocephalus

10/21
 
St. Louis WALK to End Hydrocephalus
 
 
10/22
 
Chicago Community Network Autumn Meet N’ Greet 
 
 
10/28
 
Charlotte WALK to End Hydrocephalus
 
 
10/28
 
Houston WALK to End Hydrocephalus
 
10/29
 
Central Alabama WALK to End Hydrocephalus

 
 
11/18
 
Long Island Community Network Support Group Meeting
 
 
11/19

Boston Community Network Meet N' Greet
 
 
11/30
 
Hydrocephalus Awareness Night - Let's ROCK THE RED!

12/9
 
Chicago Community Network Seasonal Meetup
 

 
 
 
OTHER STORIES
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The Power of Storytelling
 
Storytelling can be a powerful and influential advocacy tool in getting people to understand the breadth and depth of impact hydrocephalus has on individuals and families.
 
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New Theories in Posthemorrhagic Hydrocephalus
A recent study expands these results to posthemorrhagic hydrocephalus in premature infants. Please take a moment to read more about this important research.
 
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Share Your Story - Taelley 2 1/2
 
My identical twin girls Taelley and Pelley were born at 26 weeks 6 days. Too early!.
 
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Dynamic Duo Share Congenital Hydrocephalus Diagnosis
 
Shared to us by our partner Gillette Children's Specialty Healthcare about two brothers living with #hydrocephalus
 
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Save the Date for Rare Disease Week on Capitol Hill
Apply NOW for the travel stipend for Rare Disease Week! 

 
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Mary Decker Mentorship Award: Call for Nominations
 
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
 
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