Dealing with Fear and Uncertainty

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In this installment of our video blog series, Through a Mother’s Eye’s, Debby Buffa addresses the question of how to deal with the fear and uncertainty experienced by parents and caregivers supporting a loved one with hydrocephalus. Make sure to read the list of resources included below the video.

We will address this topic at three sessions at our 13th National Conference on Hydrocephalus. We hope you can join us and meet other parents and caregivers sharing your journey.

Coping with Hospital Stays
Presenter: Donna Wallace
Being admitted to the hospital can be a challenging experience. Ideas for making the hospital stay less scary will be presented from the Neurosurgical Team’s perspective. Tips for coping and feeling more in control will be presented. Bring your questions!

Shunt Infections
Tamara Simon, MD
Description: Shunt infections remain as the single most common complication of shunting and continue to result in multiple operations and risk for those with hydrocephalus. They can sometimes be hard to diagnose and treatment is not always successful. This talk reviews the source of infection, how they can be recognized and the common ways to treat them. Where do they come from? What do they do? How do we detect them and eliminate them?

Caregiver 101: Tips and Practical Advice
Presenter: Rhonda M. Eppelsheimer, MSW, LMSW/CSWA

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