Teens and Young Adults
If you’re a teen or young adult affected by hydrocephalus, we want you to know that you are not alone. Hydrocephalus can strike anyone at any time. Its primary treatment – the shunt – is far from perfect. Browse our teen and young adult pages to learn about resources to help you overcome the different challenges you may face. This is YOUR place for information and empowerment. Please come back often and share your feedback.
The Hydrocephalus Association provides essential tools and resources that enable you to have more control of your life. We provide the following documentation and can help connect you with resources for questions or issues you may encounter.
- About Hydrocephalus Booklet
- Hydrocephalus Diagnosed in Young and Middle-Aged Adults Booklet
- A Teachers Guide to Hydrocephalus
- Transition Initiative: Moving from Pediatric to Adult Care
- Health Care Transition Guide for Teens and Young Adults
- Second Opinions
- Durable Power of Attorney
- College and Hydrocephalus
- Questions for your Doctor: Teens and Young Adults
Teens Take Charge (TTC) trains teenagers and young adults (and their siblings), who are affected by hydrocephalus, to become self-advocates with both health professionals and with their legislators. The program provides support, trainings, and awareness and fundraising opportunities so that teens can be an effective force in making their stories heard. HA has created a place for teens and young adults (ages 12 to 25) to talk via Facebook and Twitter. Many are sharing their inspiring stories on the TTC Blog, go check it out! Join us and help create a community of teens making changes happen!
The Hydrocephalus Association’s Scholarship Program was established in 1994 to provide financial assistance to capable and promising young adults who live with the ongoing challenges and complexities of hydrocephalus. The Teens Take Charge (TTC) Program was established in 2010 and through the program we are able to provide five additional scholarships. With TTC we are proud to offer a total of thirteen scholarships in the amount of $1000 each on an annual basis.
Experience inspiration, hope and support in these personal stories shared by other teens and young adults in our community.
Connect with teens and young adults who are navigating experiences similar to yours. Visit these portals:
Be informed and current about hydrocephalus by tuning into interactive, free webinars on a variety of topics.