Adults and Caregivers
A hydrocephalus diagnosis is overwhelming whether you’re a recently diagnosed adult or someone who’s been living with the condition for many years. If you’re a friend or family member, you’ve likely felt overwhelmed while caring for or supporting someone with hydrocephalus. A particular characteristic of hydrocephalus is that symptoms and challenges are often invisible to others, which can lead to a feeling of isolation for those living with the condition.
The Hydrocephalus Association provides essential tools and resources that enable you to have more control of your life. We provide the following documentation and can help connect you with resources for questions or issues you may encounter.
- About Hydrocephalus Booklet
- Transition Initiative: Moving from Pediatric to Adult Care
- Hydrocephalus Diagnosed in Young and Middle-Aged Adults Booklet
- Durable Power of Attorney Fact Sheet
- Second Opinions Fact Sheet
- Headaches and Hydrocephalus
- Eye Problems Associated with Hydrocephalus
- How to be an Assertive Member of Treatment Team
- College and Hydrocephalus
- Questions for your Doctor: Adults and Caregivers
- Glossary of Terms
Connect with the right healthcare professional to ensure excellent care for all of your clinical needs. We offer Physician Directories as a resource for both families and clinicians.
What are the topics we are receiving the most inquiries on right now? Through blogs, articles and videos, we provide you with information from medical professionals and Hydrocephalus Association support staff on the topics that are important to you.
Be informed and current about hydrocephalus by tuning into interactive, free webinars on a variety of topics.
Meet adults and caregivers who are navigating similar experiences. Visit these portals:
Reach out to other organizations and hospitals for valuable information and support for individuals living with chronic medical conditions.