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I Can Relate Video Series: How Do You Tell Your School About Your Condition?
In this episode of our I Can Relate Video Series, Lauren shares her experience with informing her school about her hydrocephalus.
Your Healthcare Team
Living well with hydrocephalus often requires a team of healthcare providers. Together, you’ll monitor your condition.
NPH and Comorbidities
NPH can frequently co-exist with other age-related neurologic and medical conditions that may produce similar symptoms.
Transition Initiative: Transitioning from Pediatric to Adult Care
A major milestone in a young adult living with hydrocephalus is the transition from pediatric to adult medical care. Learn about the HA Transition Initiative.
Living Independently
Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.
Chronic Pain and Hydrocephalus
Many people with hydrocephalus experience chronic pain although the exact numbers are unknown.
Disclosing in the Workplace
Deciding whether to disclose your hydrocephalus diagnosis in the workplace can be daunting. While sharing may lead to understanding and support, it’s a personal choice that requires careful planning, clear boundaries, and consideration of timing and audience.
Ask the Expert Video Series: Return of NPH Symptoms
In this episode, we explore why symptoms may return after treatment for normal pressure hydrocephalus (NPH).
Ask the Expert Video Series: ETV as a Treatment for NPH
In this episode, we discuss the treatment options for normal pressure hydrocephalus (NPH), including the endoscopic third ventriculostomy, or ETV, a surgical method that allows for treatment without the use of a shunt.
Ask the Expert Video Series: Symptom Improvement after NPH Treatment
This episode explores symptom improvement after treatment for normal pressure hydrocephalus (NPH).
Ask the Expert Video Series: Untreated Normal Pressure Hydrocephalus (NPH)
This episode discusses the long-term prognosis for individuals unable to be treated or who choose not to be treated for normal pressure hydrocephalus (NPH)
Ask the Expert Video Series: Dementia or NPH?
In this episode, we explore the proper diagnosis of NPH and the next steps once a diagnosis has been made.
Ask the Expert Video Series: Transitioning to Adult Healthcare
Planning for transition from pediatric to adult healthcare is key to its success; however, this process can be complex and overwhelming. In this episode of our Ask the Expert Video Series, we discuss how a “medical home” in adult healthcare differs from pediatric healthcare and how caregivers and healthcare professionals can help young adults make a successful transition.
Ask the Expert Video Series: Intracranial Pressure in Hydrocephalus Patients
Is there a normal level for intracranial pressure? How do doctors measure intracranial pressure and how is this procedure helpful for some hydrocephalus patients? In this episode of our Ask the Expert Video Series for Adults Living with Hydrocephalus, doctors from Johns Hopkins Medicine explore these commonly asked questions.
Ask the Expert Video Series: With No Problems, Should You See a Neurosurgeon?
In this episode of our Ask the Expert Video Series, Drs. Mark Luciano and Abhay Moghekar, from Johns Hopkins Medicine, discuss whether hydrocephalus patients should see a neurosurgeon or neurologist even if they don’t have any problems with their shunt or ETV. And if so, how often should you see your neurologist or neurosurgeon?
Ask the Expert Video Series: Pregnancy and Hydrocephalus — Is It Safe?
In this episode of our Adult Hydrocephalus Ask the Expert Video Series, Drs. Mark Luciano and Abhay Moghekar, from Johns Hopkins Medicine, answer a commonly asked question – is it safe for women with hydrocephalus to have children?
Ask the Expert Video Series: Headaches and Hydrocephalus
In our Ask the Expert video for adults living with hydrocephalus, doctors from Johns Hopkins Medicine address whether hydrocephalus patients are predisposed to headaches and why. They also discuss ways to alleviate and prevent headaches. This video is sponsored by our industry partner, Medtronic.
Ask the Expert Video Series: Slit Ventricles vs. Slit Ventricle Syndrome
In this episode of our Adult Hydrocephalus Ask the Expert Video Series, Drs. Mark Luciano and Abhay Moghekar, from Johns Hopkins Medicine, discuss the difference between having slit ventricles and slit ventricle syndrome, and how it impacts hydrocephalus patients. This video is sponsored by our industry partner, Medtronic.
Extracurricular Activities and Hobbies: The Positive Effect They Have for Individuals with Disabilities
People with disabilities can benefit greatly by taking part in hobbies and extracurricular activities. Here are some tips to help you identify the activity that’s right for you.