Rating
How to Reconnect and Trust your Body
In this blog, Bethany Holmes, Certified Integrative Health Coach, and Reiki Practitioner discusses how to reconnect, trust, love, and heal your body after trauma.
Recovering and Maintaining Functionality
Symptom improvement after shunt surgery to treat NPH is impacted by a number of variables. After surgery, PT, OT, and other therapies may be advised to help.
I Can Relate Video Series: Do You Share Your Scars?
In this episode of our I Can Relate Video Series, Cree, a high school senior, talks about who gets more anxious when it’s time for her brain surgery—her or her parents.
I Can Relate Video Series: Who Worries More? You or Your Parents?
In this episode of our I Can Relate Video Series, Lauren reflects on whether she or her parents worry more about her hydrocephalus.
I Can Relate Video Series: Who Do You Share Your Condition With?
In this episode of our I Can Relate Video Series, Lauren opens up about who she chooses to share her hydrocephalus condition with.
I Can Relate Video Series: What is the Best App You’ve Found?
In this episode of our I Can Relate Video Series, Lauren talks about the best app she’s discovered that helps her manage life with hydrocephalus.
I Can Relate Video Series: Types of Headaches
In this episode of our I Can Relate Video Series, Lauren discusses the different types of headaches she experiences with hydrocephalus.
I Can Relate Video Series: How Do You Tell Your School About Your Condition?
In this episode of our I Can Relate Video Series, Lauren shares her experience with informing her school about her hydrocephalus.
Your Healthcare Team
Living well with hydrocephalus often requires a team of healthcare providers. Together, you’ll monitor your condition.
NPH and Comorbidities
NPH can frequently co-exist with other age-related neurologic and medical conditions that may produce similar symptoms.
Transition Initiative: Transitioning from Pediatric to Adult Care
A major milestone in a young adult living with hydrocephalus is the transition from pediatric to adult medical care. Learn about the HA Transition Initiative.
Living Independently
Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.
Essential Facts About Epilepsy and Hydrocephalus
Epilepsy is common in people with hydrocephalus. Of individuals with shunted hydrocephalus, an estimated 20% have epilepsy
Chronic Pain and Hydrocephalus
Many people with hydrocephalus experience chronic pain although the exact numbers are unknown.
Disclosing in the Workplace
Deciding whether to disclose your hydrocephalus diagnosis in the workplace can be daunting. While sharing may lead to understanding and support, it’s a personal choice that requires careful planning, clear boundaries, and consideration of timing and audience.
Ask the Expert Video Series: Return of NPH Symptoms
In this episode, we explore why symptoms may return after treatment for normal pressure hydrocephalus (NPH).
Ask the Expert Video Series: ETV as a Treatment for NPH
In this episode, we discuss the treatment options for normal pressure hydrocephalus (NPH), including the endoscopic third ventriculostomy, or ETV, a surgical method that allows for treatment without the use of a shunt.
Ask the Expert Video Series: Symptom Improvement after NPH Treatment
This episode explores symptom improvement after treatment for normal pressure hydrocephalus (NPH).
Ask the Expert Video Series: Untreated Normal Pressure Hydrocephalus (NPH)
This episode discusses the long-term prognosis for individuals unable to be treated or who choose not to be treated for normal pressure hydrocephalus (NPH)