In the News
The Los Angeles Times reports that players from the Stanley Cup champs, the LA Kings, will join little Charlie and over 600 other walkers and runners at the Los Angeles, California – Hydrocephalus Association WALK, co-chaired by Charlie’s mom, Jennifer Pope.
Researchers at Yale School of Medicine have discovered a new pathway to help treat perinatal brain injuries that could lead to treatments for traumatic brain injuries and neurodegenerative disorders like Alzheimer’s and Parkinson’s.
Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.
Baby Elijah, abandoned outside of a Love a Child orphanage in Haiti, received a shunt to treat his hydrocephalus from the heartfelt donation of Dr. David Klein, Dr. Douglas Hershkowitz, and the staff at Fawcett Memorial Hospital in Port Charlotte.
Charles Daniel, Alabama ABC 33/40 Meteorologist, takes the #IceBucketChallenge and dedicates it to #hydrocephalus after being challenged by Wettermark Keith Personal Injury Lawyers.
“Most of the time you can’t see it on the outside, but on the inside people know you’re struggling.” Allie Degrood, her mom and neurosurgeon promote our Twin Cities Hydrocephalus Awareness WALK at the Mall of America on KARE 11 News.
The Cross Timbers Gazette features Megan Redfearn and her daughter, Emma, and highlight Megan’s work to support families through leading the Hydrocephalus Association Dallas Community Network and co-chairing the inaugural DFW Hydrocephalus Association 5K WALK on September 27, 2014.
300 top neuroscientists gathered to meet on and discuss a full range of CSF disorders affecting both children and adults, primarily focused on hydrocephalus.
ABC12.com shares that Harry Porterfield, CBS 2 Chicago 11 am news co-anchor with Roseanne Tellez, will serve as the Honorary Chair of the 10th Annual Chicago Hydrocephalus Association WALK on Sunday, September 6, 2014.
Favorite Things for a Cause educates about hydrocephalus and highlights the second annual Greater Charlotte Hydrocephalus Association Walk on September 13, 2014.
Amanda Harris, writing for the South Charlotte News, a community paper of The Charlotte Observer, shares the story of 3 year-old Zoe, the daughter of our Charlotte WALK Co-chair Susan Slattery-Rogers.
The Kenyon Leader features a local Kenyon-Wanaming teen, 16 year-old Allie Degrood, who will lead a team in this year’s Twin Cities Hydrocephalus Association WALK at the Mall of America on September 7.
Haley Lewis, Miss Tennessee 2014, takes the #icebucketchallenge for ALS AND for #HYDROCEPHALUS in honor of little Ema McLaughen, our Chattanooga Hydrocephalus Association WALK Co-chair’s daughter.
Flint Rock Station 101.5’s Chris Monroe makes a call out to the community to support a local Flint family at the 2014 Detroit Hydrocephalus Association WALK.
A thought-provoking piece by Dr. Robert Pearl, CEO of the Permanente Medical Group, on funding medical research, featuring an honest and emotional opening by Susan Fiorella about her son, Jake, who has hydrocephalus.
The National Science Foundation awarded 36 Early Concept Grants for Exploratory Research (EAGER) for the creation of technologies that can better explain how complex behaviors emerge from brain circuits.
California is the first state to enact its own brain research program – Cal-BRAIN, making it a leader in brain research in the U.S. according to an opinion piece in the Sacramento Bee.
Reporter Peter King with Newsday interviews Dr. Norman Relkin about Normal Pressure Hydrocephalus and the difficulties with discerning between it and Alzheimer’s.
The Times of India reports that GaitRite is being used to detect normal pressure hydrocephalus in suspected patients by analyzing an individual’s gait for one of the telltale signs of shuffling common in NPH patients.
With advances in diagnosis and treatment since the 1950s, the majority of individuals with hydrocephalus are transitioning into adulthood. This transition comes with significant challenges that a recent article in the Wall Street Journal highlights.
Jon Rosen with the LA Kings Insider shares details about hydrocephalus and the upcoming LA Hydrocephalus Association WALK, co-sponsored by the LA Kings.
3 year-old Chance Haines and his family celebrated a new handicap-accessible playground made possible by the Make-A-Wish Foundation.
Leilani Schweitzer, who lost her 20 months old son Gabriel, who had hydrocephalus, is now a patient liaison with Stanford University Hospital and an advocate for better hospital-patient communication.
Matthew Schwerha with ViewsMix Chicago features 29 year-old Eric Tolbert who has endured over 500 surgeries to manage his hydrocephalus. Eric will join over 600 other walkers at this year’s 10th Annual Chicago Hydrocephalus Association Walk on Sept. 6, at Lincoln Park Zoo.
The Apple Gold Group, a franchisee of Applebee’s Neighborhood Grill and Bar, is hosting a fundraiser to support the 2nd annual Hydrocephalus Association of Columbia WALK. The CEO of Apple Gold Group encourages the Columbia, South Carolina community to support the cause.
The Boston Globe reports on a new company dedicated to developing treatments for neurological diseases. The company, CereVasc LLC, a partnership between Tufts Medical Center and Aton Partners, LLC, will look into a more successful and cost-effective way to treat communicating hydrocephalus.
The Kids Wish Network granted 4 year-old Jace Carmack his wish for him and his family to visit Disneyland and Universal Studios. Jace was born with hydrocephalus and has endured numerous brain surgeries to revise his shunt.
Working with the Frisco Parks and Recreation Department, Frisco Commons was selected for the site of the inaugural 2014 Dallas/Fort Worth Hydrocephalus Association WALK which will take place on September 27, 2014.
Matt Kocsis, an entering senior at Cumberland Valley High School, shares his hydrocephalus journey of 98 brain surgeries, three years in a wheelchair, and his enduring hope for better treatment options and a cure. He completed the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA.
Matt Kocsis will be joined by family, friends, and his life-long neighbor, Brian Osborne, a Season 10 The Bachelorette contestant, as he WALKs for a cure at the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA. Matt, a senior in high school, has undergone 93 brain surgeries to treat his hydrocephalus.
Brian Osborne, a Season 10 contestant on The Bachelorette, will participate in the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA. He will be participating in support of his life-long naighbor, Matt Kocsis, who has hydrocephalus.
lohud.com interviews Arthur Rappaport, the inventor of a portable real-time ultra-sound instrument that measures intracranial pressure without surgical intervention. The device is hoped to be a way to detect traumatic brain injury and treat pathological brain conditions.
Dr. Daniele Rigamonte, director of the Department of Neurosurgery’s stereotactic radiosurgery at Johns Hopkins, shares his vast knowledge of Normal Pressure Hydrocephalus in a newly published book, “Adult Hydrocephalus.” In the book he sites a 2007 study he led that highlights the potential national cost savings to proper timely diagnosis of NPH by the medical community.
The Lawrence Livermore National Laboratory is developing a device that they hope will restore memory in patients with Alzheimer’s disease, traumatic brain injury (TBI), epilepsy, and other neurological conditions.
WCCB Charlotte features the 2nd Annual Greater Charlotte Hydrocephalus Association WALK which will take place on September 13, 2014, at the Elizabeth Park, Little Sugar Creek Greenway.
Roll Call spotlights injuries and medical conditions on the rise in U.S. Troops who have served in Iraq and Afghanistan which include hydrocephalus, epilepsy, sleep disorders, and brain injury, among other conditions.
View videos from the International Federation for Spina Bifida and Hydrocephalus’ 25th International Conference, GENErating Changes, in Buenos Aires, Argentina on their YouTube channel.
Researchers at Case Western Reserve University have found that a malfunction in specific genes triggered hydrocephalus in mouse models. The findings were published in the journal, Neuron.