In the News

LA Kings Players Join 600 WALKERS at the LA Hydrocephalus Association WALK

The Los Angeles Times reports that players from the Stanley Cup champs, the LA Kings, will join little Charlie and over 600 other walkers and runners at the Los Angeles, California – Hydrocephalus Association WALK, co-chaired by Charlie’s mom, Jennifer Pope.

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Study Could Lead to Treatments for TBI and Neurodegenerative Disorders

Researchers at Yale School of Medicine have discovered a new pathway to help treat perinatal brain injuries that could lead to treatments for traumatic brain injuries and neurodegenerative disorders like Alzheimer’s and Parkinson’s.

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Codman Neuro Inaugurates Hydrocephalus Research Prize at ISHCSF

Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.

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Florida Doctors Donate Shunt to Abandoned Baby with Hydrocephalus

Baby Elijah, abandoned outside of a Love a Child orphanage in Haiti, received a shunt to treat his hydrocephalus from the heartfelt donation of Dr. David Klein, Dr. Douglas Hershkowitz, and the staff at Fawcett Memorial Hospital in Port Charlotte.

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Alabama Company Challenges Local Meteorologist to Ice Bucket Challenge for Hydrocephalus

Charles Daniel, Alabama ABC 33/40 Meteorologist, takes the ‪#‎IceBucketChallenge‬ and dedicates it to ‪#‎hydrocephalus‬ after being challenged by Wettermark Keith Personal Injury Lawyers.

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Twin Cities Hydrocephalus Association WALK Featured on KARE11 News

“Most of the time you can’t see it on the outside, but on the inside people know you’re struggling.” Allie Degrood, her mom and neurosurgeon promote our Twin Cities Hydrocephalus Awareness WALK at the Mall of America on KARE 11 News. ‪

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Texas Mother-daughter Duo Raises Hydrocephalus Awareness

The Cross Timbers Gazette features Megan Redfearn and her daughter, Emma, and highlight Megan’s work to support families through leading the Hydrocephalus Association Dallas Community Network and co-chairing the inaugural DFW Hydrocephalus Association 5K WALK on September 27, 2014.

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Bristol is Meeting Ground for 300 Top Neuroscientists

300 top neuroscientists gathered to meet on and discuss a full range of CSF disorders affecting both children and adults, primarily focused on hydrocephalus.

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CBS 2 Chicago Morning Anchor Announced Honorary Chair of the Hydrocephalus Association Chicago WALK

ABC12.com shares that Harry Porterfield, CBS 2 Chicago 11 am news co-anchor with Roseanne Tellez, will serve as the Honorary Chair of the 10th Annual Chicago Hydrocephalus Association WALK on Sunday, September 6, 2014.

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Non-profit Helps Raise Hydrocephalus Awareness

Favorite Things for a Cause educates about hydrocephalus and highlights the second annual Greater Charlotte Hydrocephalus Association Walk on September 13, 2014.

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Charlotte Hydrocephalus Association WALK Featured in The Charlotte Observer

Amanda Harris, writing for the South Charlotte News, a community paper of The Charlotte Observer, shares the story of 3 year-old Zoe, the daughter of our Charlotte WALK Co-chair Susan Slattery-Rogers.

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Walking on the WILD SIDE in Houston

Woodlands Online features the upcoming Houston Hydrocephalus Association WALK which will take place at the Houston Zoo on September 20th.

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16 Year Old Leads Local Team in Twin Cities Hydrocephalus WALK

The Kenyon Leader features a local Kenyon-Wanaming teen, 16 year-old Allie Degrood, who will lead a team in this year’s Twin Cities Hydrocephalus Association WALK at the Mall of America on September 7.

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Miss TN Takes the Ice Bucket Challenge for Hydrocephalus and ALS

Haley Lewis, Miss Tennessee 2014, takes the ‪#‎icebucketchallenge‬ for ALS AND for ‪#‎HYDROCEPHALUS‬ in honor of little Ema McLaughen, our Chattanooga Hydrocephalus Association WALK Co-chair’s daughter.

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Flint Rock Station Unites Behind Detroit Hydrocephalus Association WALK

Flint Rock Station 101.5’s Chris Monroe makes a call out to the community to support a local Flint family at the 2014 Detroit Hydrocephalus Association WALK.

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Better Approach to Research Funding?

A thought-provoking piece by Dr. Robert Pearl, CEO of the Permanente Medical Group, on funding medical research, featuring an honest and emotional opening by Susan Fiorella about her son, Jake, who has hydrocephalus.

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NSF Awards Grants to Create Technologies that Explain Complex Brain Behaviors

The National Science Foundation awarded 36 Early Concept Grants for Exploratory Research (EAGER) for the creation of technologies that can better explain how complex behaviors emerge from brain circuits.

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California Reaching to be a Leader in Brain Research

California is the first state to enact its own brain research program – Cal-BRAIN, making it a leader in brain research in the U.S. according to an opinion piece in the Sacramento Bee.

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Newsday Features Normal Pressure Hydrocephalus

Reporter Peter King with Newsday interviews Dr. Norman Relkin about Normal Pressure Hydrocephalus and the difficulties with discerning between it and Alzheimer’s.

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Portable Device May Aid in Diagnosis of Normal Pressure Hydrocephalus

The Times of India reports that GaitRite is being used to detect normal pressure hydrocephalus in suspected patients by analyzing an individual’s gait for one of the telltale signs of shuffling common in NPH patients.

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Wall Street Journal Addresses the Difficulties of Transitioning to Adult Care

With advances in diagnosis and treatment since the 1950s, the majority of individuals with hydrocephalus are transitioning into adulthood. This transition comes with significant challenges that a recent article in the Wall Street Journal highlights.

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LA Kings Insider Sends Out an LA Hydrocephalus Association WALK Invitation

Jon Rosen with the LA Kings Insider shares details about hydrocephalus and the upcoming LA Hydrocephalus Association WALK, co-sponsored by the LA Kings.

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Make-A-Wish Foundation Grants a Handicap-accessible Playground for OH Boy

3 year-old Chance Haines and his family celebrated a new handicap-accessible playground made possible by the Make-A-Wish Foundation.

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Mom Working to Improve Hospital Errors that Led to Son’s Death

Leilani Schweitzer, who lost her 20 months old son Gabriel, who had hydrocephalus, is now a patient liaison with Stanford University Hospital and an advocate for better hospital-patient communication.

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500 Surgeries for Hydrocephalus and Still WALKING Strong

Matthew Schwerha with ViewsMix Chicago features 29 year-old Eric Tolbert who has endured over 500 surgeries to manage his hydrocephalus. Eric will join over 600 other walkers at this year’s 10th Annual Chicago Hydrocephalus Association Walk on Sept. 6, at Lincoln Park Zoo.

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Apple Gold Group Joins with HA to Raise Funds for Hydrocephalus

The Apple Gold Group, a franchisee of Applebee’s Neighborhood Grill and Bar, is hosting a fundraiser to support the 2nd annual Hydrocephalus Association of Columbia WALK. The CEO of Apple Gold Group encourages the Columbia, South Carolina community to support the cause.

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New Partnership Will Focus on Advancing Treatment for Communicating Hydrocephalus

The Boston Globe reports on a new company dedicated to developing treatments for neurological diseases. The company, CereVasc LLC, a partnership between Tufts Medical Center and Aton Partners, LLC, will look into a more successful and cost-effective way to treat communicating hydrocephalus.

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Kids Wish Network Grants California Boy with Hydrocephalus a Disney Adventure

The Kids Wish Network granted 4 year-old Jace Carmack his wish for him and his family to visit Disneyland and Universal Studios. Jace was born with hydrocephalus and has endured numerous brain surgeries to revise his shunt.

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Frisco Commons Park Partners with the Inaugural Hydrocephalus Association WALK in Dallas, TX

Working with the Frisco Parks and Recreation Department, Frisco Commons was selected for the site of the inaugural 2014 Dallas/Fort Worth Hydrocephalus Association WALK which will take place on September 27, 2014.

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Matt Kocsis WALKing Proud for Hydrocephalus Awareness

Matt Kocsis, an entering senior at Cumberland Valley High School, shares his hydrocephalus journey of 98 brain surgeries, three years in a wheelchair, and his enduring hope for better treatment options and a cure. He completed the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA.

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WALKing for a Cure after 93 Brain Surgeries

Matt Kocsis will be joined by family, friends, and his life-long neighbor, Brian Osborne, a Season 10 The Bachelorette contestant, as he WALKs for a cure at the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA. Matt, a senior in high school, has undergone 93 brain surgeries to treat his hydrocephalus.

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Brian Osborne of The Bachelorette Will WALK in Hershey for the Hydrocephalus Association

Brian Osborne, a Season 10 contestant on The Bachelorette, will participate in the 2014 Central PA Hydrocephalus Association WALK in Hershey, PA. He will be participating in support of his life-long naighbor, Matt Kocsis, who has hydrocephalus.

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Portable ICP Monitor Soon to Market

lohud.com interviews Arthur Rappaport, the inventor of a portable real-time ultra-sound instrument that measures intracranial pressure without surgical intervention. The device is hoped to be a way to detect traumatic brain injury and treat pathological brain conditions.

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Update on Baby Roona Begum of India

Update on the infant from India who brought international attention to hydrocephalus when her head grew three times its normal size.

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New Book on NPH Sights Considerable Savings with Proper Diagnosis

Dr. Daniele Rigamonte, director of the Department of Neurosurgery’s stereotactic radiosurgery at Johns Hopkins, shares his vast knowledge of Normal Pressure Hydrocephalus in a newly published book, “Adult Hydrocephalus.” In the book he sites a 2007 study he led that highlights the potential national cost savings to proper timely diagnosis of NPH by the medical community.

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Brain Implant Could Restore Memory

The Lawrence Livermore National Laboratory is developing a device that they hope will restore memory in patients with Alzheimer’s disease, traumatic brain injury (TBI), epilepsy, and other neurological conditions.

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Charlotte HA WALK Featured on WCCB Charlotte

WCCB Charlotte features the 2nd Annual Greater Charlotte Hydrocephalus Association WALK which will take place on September 13, 2014, at the Elizabeth Park, Little Sugar Creek Greenway.

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U.S. Troops Experiencing Increases in Epilepsy and Hydrocephalus, Among Other Conditions

Roll Call spotlights injuries and medical conditions on the rise in U.S. Troops who have served in Iraq and Afghanistan which include hydrocephalus, epilepsy, sleep disorders, and brain injury, among other conditions.

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Videos from the IF Global Conference

View videos from the International Federation for Spina Bifida and Hydrocephalus’ 25th International Conference, GENErating Changes, in Buenos Aires, Argentina on their YouTube channel.

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One Cause of Hydrocephalus Linked to Genetic Function

Researchers at Case Western Reserve University have found that a malfunction in specific genes triggered hydrocephalus in mouse models. The findings were published in the journal, Neuron.

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