In the News
Could a genetic mutation explain why some people with congenital hydrocephalus experience neurological problems? That’s what a new study by Dr. Kristopher Kahle of Yale University suggests. The study was recently published in the journal, Neuron, and highlighted by Yale News. Read the full article
Parents magazine published an in-depth article about hydrocephalus — it’s causes, symptoms and treatment. The article features quotes from HA’s National Director of Communications and Program Services, Amanda Garzon, as well as several other experts. Click here to view the article.
The Hydrocephalus Association’s NoMoreBS (No More Brain Surgeries) Campaign was highlighted recently by Everyday Health. The story offers an in-depth look at hydrocephalus and why so many people living with hydrocephalus undergo multiple brain surgeries. Click here to view the news article
When UFC fighter Ray Borg shared how hard it was dealing with his son’s hydrocephalus, away from the rest of his family in New Mexico, it brought together an entire community in Colorado dealing with this disease. Families from across Colorado started writing about their stories online and shared them with 9News Denver. They not only […]
For 19-year-old Tomas Rodriguez, swimming is second nature. You might say that’s fitting or fate considering he was born with a medical condition that essentially translates to “water on the brain.” This week, he will head to Cincinnati to compete in a paralympic swim meet for a chance to win a national ranking and hopefully […]
A new startup is trying to find a better way to detect shunt failure. Professors Ellis Meng and Tuan Hoang, both of the Department of Biomedical Engineering at USC Viterbi, thought it high time to invent a “self-aware” device that could inform doctors with a sense of the shunt’s condition in real-time. In 2013, they […]
Dr. Steven Schiff and his colleagues are studying climate change to better understand how to prevent infectious disease and the development of postinfectious hydrocephalus in developing countries.
Adam Page, living with hydrocephalus and spina bifida, is a member of the USA Hockey Team that won the Gold Medal in the 2018 Paralympic Winter Games in PyeongChang!
Abby Cahil has hydrocephalus. Despite the many daily challenges hydrocephalus can place on a child, Abby finds freedom through running. Read her story posted on Minnesota’s StarTribune. Click here to read the article.
The LA Kings Insider profiles our Los Angeles Hydrocephalus WALK and the incredible commitment of the LA Kings to standing with our hydrocephalus community.
Sarah Ann and Mikell highlight how hydrocephalus can impact each of us differently as they raise awareness on ABC4 Utah and invite Utahns to participate in the 9th Annual Salt Lake City Hydrocephalus WALK.
Forbes features a story on the inspiration behind Team Hydro and their mission to fund hydrocephalus research. Pam Finlayson, a Team Hydro founder and a member of the Hydrocephalus Association Board of Directors, in interviewed with her sons, Peter and Sam.
Chicago radio station 101.9FM The Mix featured Katie Cook, our Chicago Hydrocephalus Association WALK Chair, on their weekly radio show “MIX Matters” with Susan Wiencek.
A study out of Brown University suggests that there may be a window for therapeutic intervention aimed at minimizing further damage after a traumatic brain injury (TBI).
Ashley Sievert , a New Orleans makeup artist and beauty brand owner, will hold a benefit that will raise funds for a young Haitian=born toddler living with her adopted mother in the U.S.
The ReFlow shunt system from Alcyone Lifesciences is seeking FDA approval for the commercial resale after being successfully implanted in 4 patients in an ongoing study at Boston Children’s Hospital.
A new study, whose abstract was released at the American Academy of Neurology meeting, finds that student athletes with concussions had less water movement, or diffusion, shortly after their injuries as compared to other players who had not had concussions. Click here to read the full article.
Three children in Singapore with chronic health conditions are raising money for other children in dire financial need so that they can receive medical treatment. One of the children is a young boy has two shunts to treat his hydrocephalus.
Olympic Gold medalist Shawn Johnson East supported a fundraiser in Pelham, Alabama, to support the construction of a new gym and to benefit the Hydrocephalus Association.
Dr. Jay Riva-Cambrin of Alberta Children’s Hospital is featured in Calgary Metro for his use of the Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization in infants born with hydrocephalus.
Tristen Pierce was born with a rare birth defect called rhombencephalosynapsis and has a shunt as part of his treatment plan. Despite numerous challenges, Tristen has proved to be a fighter.
A study finds specific risk factors following pediatric neurosurgery are associated with hospital readmission, including complications with shunt placement and infection.
Transparency Market Research finds that by 2023, the market for cerebrospinal fluid (CSF) management, including the manufacturing and use of shunts and CSF drainage systems, will reach 1,840.5 Million.
Because of the country’s high numbers of children with hydrocephalus, doctors, including Dr. David Limbrick of St. Louis Children’s Hospital, traveled to Uganda so they could learn the technique. Two years ago, Limbrick traveled 8,000 miles to the East African country for more than a week of intensive training.
The Duchess, who has been the patron of the charity since 1973, will meet some of the charity’s members among the 250 delegates attending the launch.
Muhimbili Orthopedic Institute (MOI), in collaboration with Friends of Children with Cancer (FOCC), has launched a special camp to conduct operations for the children with neurosurgical problems.
A certain type of hydrocephalus can cause a person to lose the ability to walk and talk normally. And because the symptoms are similar to dementia or Parkinson’s, it’s a condition that can be easily overlooked. But if doctors properly diagnose N.P.H. , they can often reverse it.
Elyse was selected as one of two children to serve as this year’s “National Ambassador of Hydrocephalus Awareness,” for the Pediatric Hydrocephalus Foundation, to help raise the level of awareness and education about Hydrocephalus in the United States.