In the News

Representative Ritchie Torres Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families in NY-15

January 8, 2024

Representative Torres will play an integral role in advocating for increased awareness, funding, and support for pediatric and adult hydrocephalus patients. His commitment further amplifies the voice of those impacted by this condition and allows him to support hydrocephalus research at Columbia University.

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‘Impacts everyone differently’: Walk to End Hydrocephalus funds research, provides support to families

October 10, 2023

Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

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Hydrocephalus on Emergency nyc

Hydrocephalus Spotlight on Emergency NYC – Episode 5

April 6, 2023

Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

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WashU Scientist Gets Grant to Further Research on Hydrocephalus

March 6, 2023

Two researchers at WashU received grants to help better understand hydrocephalus. Dr. Gabriel Haller is one of them and his research is focusing on finding out what leads to this build-up, largely in pre-mature babies.

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Zach Roloff hydrocephalus shunt surgery

‘Little People, Big World’ Star Zach Roloff Has Emergency Brain Surgery

February 11, 2023

A few days ago, Zach Roloff, one of the stars of the TLC reality series…

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Seattle Sips: Locust releasing new cold brew cider

February 10, 2023

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Why one family hopes for a ‘smarter’ device

October 26, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Hydrocephalus Spotlight on Two Medical Drama TV Series

October 20, 2022

Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

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Oppenheimer Employees WALK To End Hydrocephalus

October 6, 2022

Oppenheimer’s Seattle and Bellevue offices recently participated in the Seattle WALK to end Hydrocephalus. Oppenheimer Financial Professional, Lou Conyard, and his wife Betsy, have been involved in organizing Team Oppenheimer and participating in this effort for years.

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September is Hydrocephalus Awareness Month. How much do you know about this life-threatening condition?

September 26, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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She Once Thought Becoming a Doctor Wasn’t Possible

September 14, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Detroit Walk to End Hydrocephalus to be held at River Bends Park

September 13, 2022

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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Hydrocephalus fundraiser aims to support better treatments and a cure

September 12, 2022

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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HA Welcomes New Board Member Deitra Matthews, Columbia, SC

August 15, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA. She is CEO of The Ram Foundation and serves on HA’s Support and Education Committee.

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‘He’s never alone’: See the tattoo dad got to honor his son’s brain surgery

July 27, 2022

Carlos Marquez has a tattoo for each of his children, but this one feels extra special as son Luke has already been through five brain surgeries.

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Medical disorder common to infants found in astronauts; doctors seek solution

July 22, 2022

Medical disorder common to infants found in astronauts; doctors seek solution Was this article helpful?…

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How science, space travel may help families living with neurological conditions

July 22, 2022

How science, space travel may help families living with neurological conditions Was this article helpful?…

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Eau Claire Woman Shares Story In Hopes of Educating Others

December 11, 2018

After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey.

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Three-Year-Old Dean “The Machine” Becomes Team Captain of First Hydrocephalus Endurance Racecar!

July 5, 2018

HydroDad Bennett Wilson wanted a creative and fun way to raise awareness and funds for hydrocephalus research & programs, so he built a Hydrocephalus Racecar! Learn more about his racecar journey and how you can help support the Hydrocephalus Racing Team at their first race!

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Melissa Kopolow McCall Shared Hydrocephalus Patient Perspective on Capitol Hill

April 19, 2018

McCall shared the challenges her family has faced throughout her daughter’s journey with hydrocephalus at the 9th Annual Medical Imaging Technology Showcase.

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