At our 13th National Conference on Hydrocephalus in Portland, OR, July 9-11, 2014, we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Take a peek at our conference highlights!
In her monthly Teens Take Charge blog, Madeleine Darowiche shares her experience of starting college and offers some tips for making this transition smoother.
Prior to the introduction of an effective treatment for hydrocephalus, most individuals did not survive. However, with advances in diagnosis and treatment since the 1950s, the majority of individuals with hydrocephalus are transitioning into adulthood. This transition comes with significant challenges that a recent article in the Wall Street Journal highlights.
The Hydrocephalus Association (HA) is pleased to announce the 2014 Hydrocephalus Association Scholarship Award recipients. We would like to thank everyone who applied for a scholarship and congratulate those of you who were selected this year. HA’s Scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults and […]
In this installment of Debby Buffa’s video blog series, “Through a Mother’s Eyes: The Journey with Hydrocephalus,” she motivates a young viewer by encouraging her to go for her dreams.
Ariel Yong, guest blogger for the Hydrocephalus Association Teens Take Charge program, shares her journey with math and her ultimate accomplishment of graduating from college with a degree in mathematics.
In this installment of the Hydrocephalus Association’s video blog series, Through a Mother’s Eye’s, Debby Buffa addresses the question of how to deal with the fear and uncertainty experienced by parents and caregivers supporting a loved one with hydrocephalus.
Dr. Andrew Zabel, Ph.D., ABPP, Kennedy Krieger Institute, returns to the Hydrocephalus Association’s 13th National Conference on Hydrocephalus to lead two sessions – the ABCs of IEPs and Anxiety, Depression and Hydrocephalus. Join us in Portland, OR, July 9-11.
At the Hydrocephalus Association’s biennial national conference, interpersonal connection sessions allow attendees, like the Rocciola family, to meet lifelong friends who share their journey with hydrocephalus – other moms, dads, siblings, and peers.
This past May, I was able to walk in the Lamb Derby in Willows, CA. You can read the history about theparade below. My hometown is Willows, CA. The weather was perfect on the day of the parade and everyone was enthusiastic about walking for the Hydrocephalus Association (HA) and Teens Take Charge (TTC) program. […]
In her monthly blog, Madeleine, a Hydrocephalus Association Teens Take Charge Advisory Council member, shares her first experience meeting other teens with hydrocephalus and how it changed her whole outlook on life.
Transitioning from Pediatric-centered Care to Adult-centered Care for Young Adults with Hydrocephalus
In this installment of the Hydrocephalus Association’s video blog series, “Through a Mother’s Eye’s,” Debby Buffa addresses the question of how to make the transition from a pediatric neurosurgeon to an adult medical team to manage on-going care for hydrocephalus.
Congratulations 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!
The Hydrocephalus Association is so pleased to announce the 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!
In her monthly blog for the Hydrocephalus Association Teens Take Charge program, Madeleine celebrates National Volunteer Month with ideas for giving a little time…for a big impact.
Ariel Yong, Hydrocephalus Association Teens Take Charge blogger, follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.
Haylea Blank shares the take-aways from attending two Hydrocephalus Association national conferences that have helped her manage her hydrocephalus into adulthood.
In her monthly blog for the Hydrocephalus Association Teens Take Charge program, Madeleine Darowiche challenges all of us to practice random acts of kindness throughout the year.
The Hydrocephalus Association patient-centered National Conference empowers all of us with the tools and connections to address the medical, educational and social complexities of living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014!
The Hydrocephalus Association 13th National Conference on Hydrocephalus will be July 9-11, 2014, in Portland, OR. Madeliene Darowiche from our Teens Take Charge Advisory Council shares why it’s a MUST ATTEND EVENT for members of the hydrocephalus community. We hope to see you there!
The Hydrocephalus Association is now accepting applications for our 2014 Scholarship Program. The scholarship program was established in 1994 to provide financial assistance to capable and promising teens and young adults who have been dealing with the ongoing challenges and complexities of hydrocephalus. Happy 20 year anniversary to our scholarship program!
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, Elijah Lawrence shares his college essay, a reflection the values and gifts he lives every day of his life. Elijah is a Teens Take Charge Advisory Council member and an active member of the hydrocephalus community.
Jennifer Bechard Johnson, the Hydrocephalus Association’s Teens Take Charge mentor and Education and Support Manager, shares her views on growing up with hydrocephalus and mentoring the future voice of hydrocephalus through her work with the teen and young adult community.
Study Seeking Participants on the Clinical, Anatomic and Genetic features of Pediatric Hydrocephalus
Researchers at Seattle Children’s Hospital seek to enroll participants in a study on the clinical, anatomic and genetic features of hydrocephalus.
October is Spina Bifida Awareness Month. Nicole Small reflects on living with both spina bifida and hydrocephalus since birth, as the Hydrocephalus Association continues our interview series commemorating our 30th anniversary.
This article was written for individuals newly entering the healthcare system, particularly our growing group of young adults who will be transitioning from their parents’ insurance. By Kaitlyn Petronglo As a young adult you may be unfamiliar with the way the health insurance system works, especially in light of the new changes that will go into […]
Hydrocephalus Association Teens Take Charge Advisory Council member, Madeleine Darowiche, challenges us to raise awareness through our local media this Hydrocephalus Awareness Month 2013.
Congratulations to our 2013 Hydrocephalus Association Teens Take Charge (TTC) Scholarship Recipients! Our TTC scholarship program is made possible through the generous support of the Medtronic Foundation.