TTC Blog

Hydrocephalus Research Webinar

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers Part II

Next webinar: Optimizing the timing of interventions in neonatal hydrocephalus and new research on how brain cells react and recover under pressure.

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Hydrocephalus Research Webinar Recording Available

Hydrocephalus Treatment Part I Webinar NOW AVAILABLE

The Hydrocephalus Association’s webinar, Hydrocephalus Treatment Part I, is available online! Dr. Riva-Cambrin discusses the alternative treatments to shunting.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

One Key to College Success? Good Relationships!

One of the most important things you can do for yourself in college when you have hydrocephalus is establish good relationships with your professors early.

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My 4-H Speech about Hydrocephalus

India is a 5th grade school “buddy” to a Kindergartner who has hydrocephalus. India used her 4-H competition to educate the public and share her friendship.

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Brain 101 Educational Blog Series

Brain 101: An Overview of the Anatomy and Physiology of the Brain

The brain is a fascinating and complex organ. Research of the brain and understanding the inner workings of the brain will help us to learn about the mechanisms of certain neurological conditions, including hydrocephalus.

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Hydrocephalus Association Webinar Speak Up!

Upcoming Webinar – Speak Up! Owning Your Condition

In this webinar, attendees will learn how to educate others about their condition, receiving tips and practical ways to share their story. They will also learn how to take charge and advocate for themselves and the condition.

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Hydrocephalus Association Webinar Banner

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers

Join us for our next webinar on the latest hydrocephalus research with two former HA-sponsored Mentored Young Investigators.

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Clinical Trial Randomization

Research 101: An Explanation of Clinical Trials Design

Dr. Koschnitzky continues our Science Facts blog series with an explanation of the various clinical trial designs we find in hydrocephalus research.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

Sharing about your Hydrocephalus with College Roommates and Friends – When is the Right Time?

In her monthly blog, Madeleine shares her experience of telling her roommates and friends in college about living with hydrocephalus.

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Endoscopic Third Ventriculostomy

Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)

What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.

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Advocacy Training for Youth Webinar NOW AVAILABLE

As a young adult, does my voice count? Can I make a difference in the hydrocephalus community? Listen to our latest webinar recording for youth to learn how.

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Teens Take Charge Guest Blogger

One Big Family

Life at 14 can be tough, but Jillian’s determined to live FULLY and overcome any challenge presented to her by hydrocephalus or just being a teen.

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Upcoming Webinar: Hydrocephalus Treatment Part I

In the next webinar hosted by the Hydrocephalus Association, Dr. Riva-Cambrin will provide a general overview of ETV and ETV/CPC.

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Madeleine Darowiche, hydrocephalus blogger

Adjusting to College as a New Student

In Madeleine’s monthly blog, she shares about adjusting to college life and her plan for shunt failure or other hydrocephalus-related issues.

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Injury to Brain Matter

What’s the Matter?

This blog explains the difference between white and grey matter injuries and their effects on the brain.

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Teen with hydrocephalus driving

From 0 to 60: Driving and Hydrocephalus

For teenagers, learning to drive and getting a license is an important rite of passage. Having hydrocephalus adds a layer of complexity to the learning process.

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Reconstructed white matter fiber tracts of the brain, brainstem, and spinal cord. View through the mid-sagittal plane.

Grey is the new White? Not in the brain!

This Science Facts blog explains the difference between white and grey matter in the brain. Helping you untangle complex concepts and language in research studies!

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Neuron Superhighway

Neurons – a brain superhighway!

This month’s Science Facts blog focuses on the neuron and it’s role in basic brain function. Helping you untangle complex concepts and language in research studies!

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Teen swimmer with hydrocephalus meets the King of Spain

It’s Good to be the King…Or Meet Him!

Tomas Beltran, a record-holding swimmer with hydrocephalus, was honored at the 2014 Spanish National Sports Awards ceremony where he met the King and Queen of Spain.

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Hydrocephalus Association Scholarships

Now Accepting Applications for 2015 Hydrocephalus Scholarships!

The Hydrocephalus Association is now accepting applications for the 2015 Hydrocephalus Scholarship cycle!

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Dawn Mancuso, CEO, Hydrocephalus Association

Celebrating a BANNER Year!

With our eligibility to receive research funding through the CDMRP to launching our Adult Hydrocephalus Clinical Research Network, it has been a year of WINS.

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The College Adventure – 8 Lessons from My First Semester

Upon completing her first semester at college, TTC Blogger, Madeleine, shares advice about strategies that helped her have a positive college experience.

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Hydrocephalus Teens Take Charge Guest Blogger

Meet Emily Lucht . . . Fellow Traveler on the Teen Hydrocephalus Journey

Meet our newest TTC Blogger Emily Lucht! She shares her journey’s extra baggage. Read what she means and let’s start a conversation using #TalkTTC.

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Hydrocephalus Video Blog Parents

Through a Mother’s Eyes: Headaches and Shunt Revisions

In this video blog episode, Debby discusses shunt revisions, headaches and hydrocephalus.

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Hydrocephalus Teens on Capitol Hill

Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus

Ever thought of talking with your local, state or national government representatives about hydrocephalus but you were afraid to start the conversation, didn’t know how, or thought you were too young? Our upcoming webinar is for you!

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Hydrocephalus Physician's Directory

Is Your Doctor In Our Directory?

Do you have a neurosurgeon, neurologist, or neuropsychologist that you LOVE? Invite your doctor to join the Hydrocephalus Association’s Physician Directory!

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Neuroscience Nurse

Mary Decker Mentorship Award: Call for Nominations

Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!

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Pediatric Hydrocephalus

Pediatric Hydrocephalus Guidelines on Treatment and Management

Guidelines on the treatment and management of pediatric hydrocephalus have been published, with input from HA and members of our Medical Advisory Board.

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Hydrocephalus Research Webinar

Upcoming Webinar: Hope in Progress

Tune in to the Hydrocephalus Association’s next webinar to hear the latest on hydrocephalus research, AHCRN, and HA funded research.

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Dawn Mancuso, CEO, Hydrocephalus Association

A Season for Thanks

In the spirit of the Thanksgiving season, Hydrocephalus Association CEO Dawn Mancuso shares her heartfelt appreciation to our highly dedicated and committed volunteers.

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Teen Dating and Hydrocephalus

Dara’s 5 Top 5 Dating Rules

There is no guide on how to build the perfect relationship or how to be the perfect boyfriend or girlfriend. I have written a list which includes the five rules that I believe are the best pieces of advice I can give to other teenagers when it comes to dating.

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Teen dating and hydrocephalus

Dating and Hydrocephalus is a Tricky Subject

TTC Advisory Council Member Wyatt Barris talks about the tricky situation of dating when you have a medical condition like hydrocephalus.

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Hydrocephalus Video Blog Parents

Preparing for the Transition to College

In this installment of our video blog series, Debby addresses sending a loved one with hydrocephalus off to college and how to plan for this transition.

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Hydrocephalus and learning

Developing an Effective IEP Webinar Recording NOW AVAILABLE

The Hydrocephalus Association’s webinar, Developing an Effective IEP, is now available online! Dr. Andrew Zabel discusses how hydrocephalus impacts learning.

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Going Beyond Your Comfort Zone – A Pathway to Confidence

In her October Teens Take Charge Blog, Madeleine Darowiche shares about a leadership retreat she attended and the lessons in courage and teamwork she learned.

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Hydrocephalus Association Teens Take Charge Guest Blogger

Don’t Let Bullies Bring You Down – Stand Up!

October is National Bullying Prevention Month. TTC Blogger Henry Guion writes about his experience with bullies and offers suggestions of how to deal with difficult people.

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Adults living with hydrocephalus

Building Community: A case for adult hydrocephalus research

The Adult Hydrocephalus Clinical Research Network officially launched in October, with a goal to deliver high quality, high impact hydrocephalus research.

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Spread the word about hydrocephalus

Are YOU Up for the Challenge?

Do you want to raise awareness about hydrocephalus? THIS IS THE PERFECT OPPORTUNITY. Read how.

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Married to Hydrocephalus

“When I first met my wife, Jennifer, I had no idea what hydrocephalus was…” In an open, heartfelt blog, Andrew shares a husband’s journey with hydrocephalus.

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Board meeting of the Hydrocephalus Association

The Board of Directors Welcomes New Members

The HA Board of Directors meets to set strategic initiatives for 2015, bid farewell to two long-standing members and welcome five new members to serve.

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